
Help and Hope Happen Here
Mark Levine·546 episodes
This Podcast is going to be about Pediatric Cancer and the need to keep the awareness of this terrible disease in the public eye. My plan is to be able to interview a wide spectrum of people who all have a passion and a stake in finding a way to make the lives of these Pediatric Cancer Patients easier. I will interview oncologists, nurses, recovered patients, parents who have had to oversee their children's cancer fight, heads of Pediatric Cancer Foundations and Organizations , and others who would like to use this forum to advocate for these children.
Episodes
Gwen Mysiak worked in the field of Public Broadcasting for 19 years in Buffalo and during that time, her friend's cousin Andrew Pawlak was 13 years old and in 7th grade when he was diagnosed with a form of Pediatric Cancer and passed away 2 years later. Not too much time went by after that before Gwen switched carriers to become the Punt Pediatric Cancer Collaborative's Executive Director in 2012. This Collaborative focuses on 6 major programs to help families deal with a Pediatric Cancer situation, with a special emphasis on their bereavement program.
Sydney Belsher has been through a great deal in her still very young life as she is 12 1/2 years old, which started with stomach issues almost from her birth in the fall of 2013, and then her diagnosis of Infantile Acute Lymphoblastic Leukemia which came when she was 6 months old in April of 2014. Right after her diagnosis Sydney's lifespan was very uncertain as her doctors feared she would have a stroke and may not survive. This did not happen thankfully but Sydney has battled both physical and mental issues over the years . Fortunately Sydney has survived all of her issues and is trying to live her best life possible.
When she was 4 months old on November 14th of 2023, Kalia Arrayan was diagnosed with High Risk B Cell Acute Lymphoblastic Leukemia. This diagnosis came as a complete shock to her parents Heather and Casey who did not see any clear symptoms before a routine checkup showed a lump on her spleen. Kalia went through a very difficult treatment process for the next 8 months before she underwent a Bone Marrow Transplant with her 11 year old brother being her donor. Kalia has been doing much better over the past nearly two years as she approaches her 3rd birthday.
Marissa Metcalf does not remember many details from her treatment during her battle with Acute Lymphoblastic Leukemia which took place in 2010 when she was 3 1/2 years old. What she does know, now that she is 19 years old and looking at possible careers, is that this form of Pediatric Blood cancer has affected her in different ways as she approaches 20 years of age, and wants to help others who have been diagnosed with cancer by becoming an Oncology Nurse, which would be a great accomplishment for her and a good thing for her future patients.
Lily and Sebastian McGrath's 2 1/2 year old son Bryson was first thought to have a Wilms Tumor before his Pediatric Cancer diagnosis was changed to Stage 4 Neuroblastoma in the early days of 2023. Lily and Sebastian had to put up with a number of more than questionable medical decisions during Bryson's fight and also had to endure the final days of Bryson's life who while in Hospice Care, was promised 24 hour round the clock availability should they be needed and when they were needed the most, they were nowhere to be found. Lily also had to watch after Bryson passed away while one of the Hospice nurses attempted to rip off all of Bryson's dressings, instead of treating her son with the kid gloves that he more than deserved.
Cherie Colbom is not only an expert Nutritionist, she has written 35 books, including her Juicing For life which has sold 2 million copies and her current book which became available on April 28th entitled The Truth About Seed Oils. Cherie will talk about how Seed Oils can have negative health effects for consumers and will discuss the link between Seed Oils and Pediatric, Adolescent and Young Adult, and Adult Cancer. Cheire has been on television many times discussing this issue and has also written many articles on this subject.
Brody Bailey is one of possibly two children in the World who have been born with a Congenital Diaphragmatic Hernia and then diagnosed with Neuroblastoma. Lauren and TJ Bailey are Brody's parents and will talk about his journey with the good news being that he is more than 3 years old and is doing as well as possible health wise. The Bailey family has received great support from their Township of Deptford New Jersey community, especially from Rich Nardiello who is the head of the great Pop Pop Custom Cars Non-Profit and a wonderful advocate for the cause of Pediatric Cancer.
Jordan Belous has always had a soft spot for Pediatric Cancer Patients and when she was 16 years old in 2015 she issued a "challenge", much like the Ice Bucket Challenge, when she created a video that went viral by dancing for 14 seconds to the song WHIP/NAE NAE by Rapper Silento to either Dance or Donate. More than 7000 people took up her challenge and donated more than $100,000 to Memorial Sloan Kettering to fight the cause of Pediatric Cancer. That was the birth of her WHIP PEDIATRIC CANCER Non- Profit. Since that time Jordan has personally developed long standing and iron clad friendships with more than 300 Pediatric Cancer patients and has done extraordinary work for these kids, their families and the cause of Pediatric Cancer.
Matt Giegerich has been the Chief Executive Officer of The Matthew Larson Foundation for Pediatric Brain Tumors for the past 18 months. This foundation, also known as the Iron Matt Foundation, was started by young Matt's parents Kelly and Greg after Matt passed away from the Pediatric Brain Cancer Choroid Plexus Carcinoma in 2007, when he was 7 years old. This Foundation focuses on helping families with financial assistance as well as focusing on raising money to award Grants to researchers who are trying to help solve the many issues that are involved with Pediatric Brain Cancer. This Foundation has now awarded over 100 Grants to researchers in the United States and Canada.
Mason Fox was 10 years old when he was diagnosed with Acute Lymphoblastic Leukemia in April of 2023. Mason then went through treatment and was doing very well with his recovery before a Fungal infection got the best of him quickly in February of 2024, and led to his surprising and unfortunate passing, not even 10 full months past his original diagnosis. His parents Leslie and Michael detail the amazing persona that Mason had as he was most concerned with helping others even during treatment for this blood cancer, as he bought toys with his own money and would walk down the halls at St. Joseph's Children's Hospital with these toys in a wagon, hooked up to his IV pole, and would deliver them to the other Pediatric Cancer patients on his floor.
Liam Bascle was only able to live 7 1/2 years because of an Ependymoma Brain Tumor that he was diagnosed with in April of 2015. His persona resonated with many people despite his tender age and many tributes came his way after his very unfortunate passing in November of 2021, after fighting with this Brain Tumor for 6 1/2 years . To honor the memory of their beloved son his father Nick, with support from his mom Sarah, started the Links Fore Liam Golf Tournament in New Hampshire to help raise money for the cause of Ependymoma and Pediatric Cancer. This tournament is now held in New Hampshire, Colorado, and Louisiana, with at least 4 more locations on the horizon.
A chance phone call between Amy Davis and a friend who was taking her daughter to get checked for allergies, led Amy to take her then 2 year and 10 month old daughter Phoebe to see her Pediatrician, where shortly thereafter she was diagnosed with Acute Lymphoblastic Leukemia in June of 2010. Phoebe was in Boston Children's Hospital for 8 weeks and completed her treatment as an outpatient for the next 26 months, until she was 5 years old. From that time on Phoebe has been cancer free with no long term side effects, and is feeling great as an 18 year old. It is always nice to talk about successful Pediatric Cancer journey's on this podcast.
After being diagnosed with Acute Myeloid Leukemia when he was 3 years old in 2012, Cullen Cisneros was able to live the next 8 years of his life free of cancer until 2020 when leg pain during a baseball game led to a diagnosis of Ewings Sarcoma. Cullen's parents Amy and Matt will talk about their beloved son, who fought from 2020 until May of 2025 to try and do everything he could to stay alive, only to pass away from this Bone Cancer when he was 15 years old.
Amelia Mijach's then 2 year old son Hayes was diagnosed with High Risk Acute Lymphoblastic Leukemia when he was 2 years old in August of 2024 and the reason for his high risk status was because of his extraordinarily high white blood cell count at diagnosis. Hayes then contacted a serious fungal infection during his consolidation phase of his treatment and during the next year and a half of treatment he needed to fight off a battle of Neutropenic Fever and he experienced other battles as well. Finally in December of 2025 Hayes turned the corner and is doing much better physically and is as active as possible.
Erik Rees became an amazing Cancer Dad and Pediatric Cancer advocate during and after his daughter Jessie battled with and passed away from DIPG at the age of 12 in January of 2012. Erik talks about his beloved daughter and then details the Jessie Rees Foundation which was started because of Jessie's wish to help Pediatric Cancer patients who were at Children's Hospital of Orange County in California. Jessie started her Jessie's Joy Jars while battling her Pediatric Brain Cancer, and nearly 600,000 patients have received these Joy Jars in the United States and across the globe since Jessie was able to donate 3000 of these to patients before her passing. This foundation now raises 5 1/2 million dollars each year.
Ben Shroyers then 2 year old daughter Hannah was diagnosed with Stage 4 Neuroblastoma in 2018, then was diagnosed with Histiocytosis which ended up in her brain before she became cancer free in 2021. Now 10 years old and in 3rd grade, Hannah is doing well health wise. Ben started the Casting For The Kids Foundation in 2020 during the pandemic as a way to help families both emotionally and financially through a fishing tournament which has now raised $460,000 over the past 6 years . Ben is an amazing advocate for families in the Sarasota, Florida area and what he has accomplished through his foundation for many individuals and families in the Pediatric Cancer world is truly outstanding.
When Kelly DiGiammo's son Brayden was 13 years old in early 2024 he developed troubling health symptoms, including going from being one of the fastest runners in the school to losing his breath and running very slowly, experiencing continuing colds, and then having a bout with the flu. Brayden was diagnosed late in February of that year with Acute Myeloid Leukemia. Brayden successfully completed a Stem Cell Transplant and has been in remission since May of 2024. Kelly and Brayden will talk about his journey which has been a successful one and Kelly will also talk about her experiences getting involved in advocacy work for the cause of Pediatric Cancer.
The bill AB 703 which was signed into law by California Governor Gavin Newsom and which I talked about with Sahil Metha on my podcast a few weeks ago is just one of the important accomplishments that was led by the Society Of Emerging Leaders, which was co founded by Mary Kemp in 2022 and is under the direction of Kaitlyn Lee. This law now gives the voters in California the option to check off a box on their state tax form if they would like to donate to the cause of Pediatric Cancer. Mary and Kaitlyn will talk about many of the other programs that The Society For Emerging Leaders have started in California to benefit the cause of Pediatric Cancer.
Jacob Orlick is now a senior in High School and making plans to attend Penn State University in the fall. Jacob was 11 when he was diagnosed with the Bone Cancer Ewings Sarcoma, had his right leg amputated, but has been able to live a fulfilling life which includes his work as a Motivational Speaker and his Podcast entitled Motivational Mic. Jacob is hoping that his career path leads him into becoming a Professional Sports Broadcaster.
Dr. Katerina Levy decided to write her book THE HEALING Garden while she was a resident at the Broward Medical Health Center in South Florida. This book was based on the Healing Garden that she saw while at that Medical Center and is full of strategies that work for kids who are trying to cope with being diagnosed with any form of Pediatric Cancer. Dr. Levy is still in the very early stages of her career as a Pediatric Psychologist.
Being treated terribly by her swimming coach and eventually belittled and made fun of by her teammates, Meghan Macantee was diagnosed with Acute Myeloid Leukemia in the fall of 2023, during her sophomore year at SUNY Potsdam where she was a member of the swimming team. Before her diagnosis, Meghan went to the emergency room 11 times where she was also treated poorly. In short, no one believed this wonderful young woman The fact that she was diagnosed with such a difficult form of Pediatric Cancer says it all. Meghan is now doing well health wise and giving back to others with her non-profit MEGHANSMISSIONINC. Meghan never received an apology from any of the people who so terribly wronged her. SHAME ON THEM.
Payton Alexander was living a healthy and normal life for a 14 year old until late in 2017 when she began experiencing symptoms that needed to be checked out. These symptoms led to her diagnosis of Ewings Sarcoma in January of 2018. Payton continued to try and live as good of a life as possible as she joined the Make A Wish and Little Warrior Foundations to try and help other patients suffering from Pediatric Cancer. Payton fought for 3 1/2 years with this Bone Cancer before her passing in November of 2021 when she was 19. Her mom Kim, who talked beautifully about her beloved daughter during our podcast, has been involved in the cause of Pediatric Cancer since Kim's passing, with her Payton Alexander Foundation.
Tamy Bell's son Griffin was born 3 months prematurely in June of 2017 and 16 months later was diagnosed with Neuroblastoma in September of 2018. Griffin relapsed on two occasions after that but then in April of 2023, had a 3rd relapse that was more severe as his cancer had spread to his orbital bone. This relapse took away any realistic hope of further treatment that would help Griffin, and he passed away on March 18th of 2024, 3 months before his 7th birthday,
Sahil Mehta's older brother Ronil wanted to donate his brain to Stanford University after his passing from DIPG in 2018 in the hope that it would help another DIPG Victim in the future. Sahil took this request as his personal responsibility and then got so involved in the cause of Pediatric Cancer that he eventually worked with California Assemblyman Alex Lee to form the bill AB703, that would give the California State Taxpayers the option on their tax forms to check a box that would allow them to donate to the cause of Pediatric Cancer. This bill was fully formed and ready by July of 2025 to have Governor Gavin Newsom sign it into law. California is now only the 8th state in the country to have this provision on their tax form and Sahil is hoping that many other states will join in this effort to bring much more money into the cause of Pediatric Cancer.
Carrigan Nelson was diagnosed with Osteosarcoma in March of 2019 and fought for the next 69 months with this form of Pediatric Bone Cancer until her passing on Christmas Day in 2025 when she was 24 years old. Carrigan was a truly Iconic young woman who did so much for the cause of Pediatric and Adolescent Cancer and was beloved by everyone that knew her. A very well accomplished Singer, Dancer, and Artist, she looked at life with Joy and nothing mattered to her more than trying to inspire other young patients with her singing and reaching out in compassion to help others in any way possible. Her mom Tammy, her Aunt Bonnie, and her greatest friends Deaven Pierpoint, Hannah Nasser, and Madison Quinn will talk about their beloved daughter, niece, and friend in this Tribute To Carrigan.
Tony Garcia will talk about his early in life Pediatric Cancer battle which began in 1973 when he was diagnosed with Leukemia when he was 2 1/2 years old. Tony's treatment finally ended nearly 10 years later in 1983 and since that time he has been doing as well as possible for the past 43 years, as a long term Pediatric Cancer survivor. Now 55 years old, Tony just published his first book (memoir) at the end of January called MY CHILDHOOD CUT SHORT. SURVIVING LEUKEMIA AND FINDING PURPOSE BEOND PAIN. Tony also is involved in supporting Pediatric Cancer patients through fundraising, volunteering, and advocacy work.
Sydney Leandro was 5 years old on Easter Sunday of 2020 when she was diagnosed with Acute Lymphoblastic Leukemia. Now at age 11, Sydney is feeling and doing well and is able to live a good life. In 2025 her brother Jack, who is now 9 years old, decided to start a non-profit called PUCKS FOR BUCKS in which he shot approximately 200 pucks a day from his driveway into a hockey goal and raised $1.00 for each puck he shot, which he donated in Sydney's honor and to help other Pediatric Cancer Patients. He donated this money to the A Wish Come True Non- Profit which had treated the Leandro family to a trip to San Diego in 2023. Jack will continue his non profit after his current hockey season ends and will begin from where he left off last summer in which he had totaled 10,027 pucks shot.
Kendel Davy is a Founding Member of the Riley Rocks Memorial Foundation and Meghan Fessenden is the Director of Social Media and Marketing for the Foundation and is Riley's sister. Together they will talk about Riley who was diagnosed with Esthesioneuroblastoma which is a Pediatric Cancer of the Nasal Cavity when she 6 years old in 2013, and battled for 3 years before her passing on July 20th of 2016 when she was 9 years old. They will also talk about their Foundation which was started by Riley's parents Kamie and Todd.
Tara Daniels is now 33 years old , married, working at a job that she enjoys , and living as good of a life as she can. Back in 2009 when Tara was 16 years old this was not the case as she was diagnosed with Acute Lymphoblastic Leukemia . Tara relapsed twice, with the last relapse coming in 2016. Tara then received a Bone Marrow transplant and since that time period, she has been cancer free. Tara will talk about all that she has been through, including survivorship on today's podcast.
Gabriella and Nicholas are 22 years old, and about to graduate from Purdue University and Indiana University respectively. This fall they will enter Medical School and will likely pursue careers in the medical field that will concentrate on Pediatric Cancer. Their cousin Maddox is now 14 years and well past his battle with Acute Lymphoblastic Leukemia but Maddox's sister Maia, who was diagnosed with Ewings Sarcoma in 2022 when she was 6 years old, passed away from this Bone Cancer on November 2nd of 2025. Gabriella and Nicholas will talk about what Maia went through during her cancer battle and will also talk about their amazing Strides For Sarcoma Non-Profit which they started after Maia relapsed, which shows both their dedication to Maia and their dedication to doing what they can to help eradicate the disease that Maia was forced to go through.
After their son Christopher passed away in 1972 from Rhabdomyosarcoma, Charles and Irma Millard decided to start a Charitable Gift Fund that would help Pediatric Cancer Patients and their families. This organization was named Four Diamonds and Suzanne Graney, who has been its Executive Director for the past 15 years, will talk about this amazing organization which pays all expenses for each child that is treated at Penn State Health Golisano Children's Hospital that are not covered by insurance. Four Diamonds is part of Penn State University and has been partnering with their Dance Marathon known as Thon which is the largest Student Run Philanthropy in the World. All of the proceeds go to Four Diamonds to help Penn State Health Golisano Children's Hospital and Penn State College of Medicine to fight Pediatric Cancer.
Maithili Shah was told by one surgeon that her then 6 month old Agastya who was diagnosed with Medulloblastoma in July of 2023, would most likely not survive 4 more months. Thankfully, Matihili and her husband made a change in surgeon's, Agastya's Brain Tumor was totally resected, and now, over 2 1/2 years later , Agastya is doing well physically as he continues to make progress from this Pediatric Brain Cancer.
4 year old Ava Blazis woke up on the morning of March 11th 2023 with a very unusual pain in her abdomen which continued to get worse as the day wore on. Her mother Angela brought her to UMass Memorial Medical Center and 3 days later on March 14th, she was diagnosed with Acute Lymphoblastic Leukemia. Angela and Ava then spent the next 65 days at Boston Children's Hospital while Ava was undergoing treatment. Meanwhile Angela's sister Johanna Annuziata got busy with helping to look after Ava's brother Michael, and also helping to start Team Ava, an unofficial Non-Profit, which has already raised over $300,000 to help in the cause of Pediatric Cancer. Ava is now 7 years old and is doing well physically as she has been in remission since May of 2025.
Alexandria Rodts's son Brayton got the stomach flu in February of 2023 which had already affected his family in January. Brayton's symptoms continued well past the normal time for a stomach flu to be an issue, and this was not helped by the fact that all the doctors he went to basically came to the same conclusion that by taking Zofran, he would feel better. 6 months later, in August of that year his diagnosis of ATRT which was so shocking, was finally confirmed at Rady's Children's Hospital in San Diego, thanks to his pediatrician who pushed much harder than others to get Brayton's true issue diagnosed correctly. He was 19 months old at the time of his diagnosis. Brayton is feeling well and doing as well as possible as 2026 is underway.
Persistent colds and a chronic cough were followed by not being able to walk and being constantly tired for Marie Gulliver's 2 year old son Ezra in 2022. These symptoms were finally diagnosed as High Risk Acute Myeloid Leukemia, which was complicated by a genetic mutation and the always difficult Graft vs, Host Disease after Ezra received a successful Bone Marrow Transplant in September of 2022. Ezra has been cancer free for more than 3 years and has ony a 5 percent chance of a relapse which is great news for him and his family.
When Aaira Khan was in 5th grade in 2021 she and her classmates at their school in Sydney Australia received a letter from a Pediatric Cancer patient which talked about the Great Cycle Challenge. Aaira quickly decided to ride in this event to raise money for this patient and for the cause of Pediatric Cancer. Aaira has now ridden in this event each year since and in the fall of last year, started her own CAN CAMPAIGN fundraiser. This fundraiser focuses on people picking up empty cans, bringing them to get recycled, and taking the proceeds that they receive from each can and donating all of these proceeds for research, to help join in the fight for these kids who need as much help as possible as they fight their own cancer battels. This campaign was just started 3 months ago and has already raised $2600.
With all types of troubling symptoms which began at the end of 2024, Sara Bailey was told that these symptoms in her then 4 year old daughter Brynlee indicated that she had Strep Throat, after the doctors that she was seeing basically dismissed her symptoms and how she was feeling. This totally unnecessary DELAYED DIAGNOSIS took approximately 4 months until her symptoms were actually examined, thanks to the insistence of Sara that Brynlee needed the proper testing which she finally received. Brynlee is scheduled later this week to Ring The Bell indicating that her treatment for her Pediatric Brain Cancer Medulloblastoma has ended, and hopefully will go into remission with a much better future then she was allowed to have when she was 4 years old and diagnosed on April 9th of 2025.
Among Katie Taylor's successes as a Certified Child Life Specialist over the past 15 years have been focusing on the parents of the children that are undergoing treatment for Pediatric Cancer, and empowering these parents to help get their children and adolescents ready for upcoming doctor's appointments, which can be a tricky proposition. Katie also established a Child Life Services program at a Newborn Intensive Care Unit with an astounding 80 beds to help these critically ill newborns. These accomplishments also go along with her being an Author, Public Speaker, and Podcast Host. Katie is an extremely busy and totally dedicated professional .
When Tony Suttles heard about 9 year old Haley Chandler being diagnosed with a form of Pediatric Cancer in 2020, he decided that he needed to do something to help this girl and their family. His solution was to start a Dirt Track Car Race and decided to call it FIGHT FOR A KID. His first race in 2024 attracted 80 cars on a track that normally had 30 cars race each weekend. By 2025, 106 cars entered and over $12,000 was raised in honor of kids like Haley who were going through their individual cancer battles. Tony and James Cumby, the father of 12 year old Brailynn Cumby who I spoke with on my Podcast on Christmas Day about her Ewings Sarcoma battle, will talk about this race and the expansion plans they have for it beginning in September when their next race is scheduled.
The only symptom that 14 year old Adie Alonzo was showing beginning in the spring of 2024 was an enlarged lymph node on her left side that had not impacted Adie's health in any way. It was not until 7 months later that this swollen lymph node was diagnosed as Hodgkins Lymphoma. After undergoing difficult treatment at Kaiser Hospital in Fontana California, Adie achieved remission on May 29th of 2025 and is doing well as 2026 begins. Adie is now 16 years old.
Ahmad Butler described the headache that he was dealing with as "Pain On The Brain" in February of 2015, a headache that was almost immediately checked out, and one day later Ahmad was undergoing Emergency Brain Surgery at St. Christoper's Hospital in Philadelphia. This surgery revealed that Ahmad was suffering from the Pediatric Brain Cancer Ependymoma. Ahmad lived for only 9 months after his diagnosis, passing away at 6 1/2 years old in November of 2015, and his Grandmother Latanya Morrison started the Ahmad Butler Foundation in 2020, a Foundation that she has been running with unyielding focus and passion.
Dr. Cristina Pozo- Kaderman is the Director of the Young Adult Program at the Dana Farber Cancer Institute and just published her book COPING WITH CANCER IN EARLY ADULTHOOD, a book that talks about the many issues that young adults, beginning at age 19 have to go through. These issues have a wide variety of problems attached to them and Cristina writes about the many solutions for which this group of cancer fighters can choose from to help them live their best lives possible.
When a "small pimple" that was on 11 year old Brailynn Cumby's back that seemed to be a simple cyst turned into Ewing's Sarcoma in October of 2024, her parents Raquel and James, not to mention Brailynn, were shocked. Brailynn went through her treatment which ended on September 9th of 2025 when she was able to Ring The Bell at Texas Children's Hospital and while in treatment, Brailynn managed to write a book entitled PETALS OF HOPE and also managed to design a Chemo Shirt which hopefully will be put to good use by other pediatric cancer patients.
Caitlin White's son Grant was 2 years old when he complained of pain from his thumb in November of 2022. This pain was not taken seriously enough by his doctors, one of whom looked at Grant while he was lying on the floor and gasping for breath in the hospital waiting room and said that his "shift was almost over" and he would order him a prescription, which had been the supposed solution heard too many time before by Caitlin. Caitlin then demanded a change in doctors, receiving a new female doctor, and this led to Grant finally being diagnosed properly for Leukemia, and began his treatment almost immediately.
Chad Gordon radiated positivity when talking about his daughter Adley's successful battle with B Cell Acute Lymphoblastic Leukemia which began just before her 2nd birthday in February of 2022, and ended 800 days later when she was able to Ring the Bell at Penn State's Hersey Children's Hospital. Chad talks about what Adley went through, and also how the THON event which is a very well known Dance Marathon at Penn State, and the Four Diamonds Childhood Cancer Organization did so much to help Adley and the Gordon Family.
I am always amazed and humbled when any parent can come on to my podcast to talk about the passing of their child from any form of pediatric cancer. This feeling was no more striking than in my conversation with Tim Finkel, who spoke so eloquently about losing his and Angela's youngest son Ryder just 54 days ago to DIPG at the age of 9. This Pediatric Brain cancer still does not have any type of good news as far as a survival rate is concerned, which is the same story that DIPG parents and families have been hearing for over 60 years.
Even though it made perfect sense that 2 year old Waylynn McCullough was experiencing the same cold like symptoms that her dad Kevin and her mom Logan had already been through, Waylynn was not as fortunate to say the least, as what she was experiencing was her lead up to her High Risk B Cell Acute Lymphoblastic Leukemia diagnosis which was given to her in January of 2024. Waylynn is now 4 1/2 years old and has been through a very difficult initial treatment plan which was followed by a very difficult Delayed Intensification Treatment plan. Waylynn is now feeling well and thankfully is leading the life for the most part as a very healthy 4 1/2 year old girl.
Grace Eline was taught values by her mom Aubrey and her father Dan at a very early age, that giving to others was far more important than wanting for yourself. Well before she was diagnosed with the Germ Cell Cancer Germinoma which took place when Grace was 9 years old, Grace had decided that rather than accepting birthday gifts, she wanted people to donate to the cause of Pediatric Cancer. Now 16 years and completely healthy, Grace started the WITH GRACE INITIATIVE as a non-profit to help other Pediatric Cancer Warriors and their families as they go through their cancer battles. This outstanding young woman attended the State of the Union when she was 10 years old as a Pediatric Cancer Representative, and has continued her work to help others, practicing the lessons that she was taught by her parents over 10 years ago.
Nya Chambless is now 16 years old, has been an actor since she was 4 years old, and is the now the Award Winning 16 year old Director of the Short Film MY GUARDIAN ANGEL. Nya and her father Jerry, who is the film's producer, will talk about this film which details the true story of the friendship between Nya and Teeja Johnson, who met in pre kindergarten, became best friends , and then Teeja passed away from Neuroblastoma just 5 months later. This film was introduced to Film Festivals across the country and beyond in April of 2025, has won multiple awards, and features topics such as Inclusion, Acceptance, Love, Friendship , the scrooge of Bullying, and awareness of Pediatric Cancer. If you would like to see information on this film click on this link. http://www.griefdialogues.com/my-guardian-angel/
When Abby Fish, who was still under the age of 2 in the summer of 2025 was diagnosed with the Pediatric Brain Cancer Choroid Plexus Carcinoma, her mom Amelia and her dad Joel were told how rare and difficult this cancer was. When they then found out that Abby also had the genetic condition Li Fraumeni to go along with her Brain cancer, they were told that the chances of her surviving until she was at least 5 years old were less than 12 percent. After hearing that, they found the Burzynski Clinic in Houston Texas, and that Dr. Burzynski had treated a young woman named Kaityln who is now 25 years old, and had suffered from both the same cancer and same genetic condition that Abby has. Abby is now following the same treatment path that Kaitlyn did.
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