EP 90: Surviving Locked In Syndrome: The Jake Haendel Story- Part 2

Part 2 Jake Haendel, the only known survivor of stage four Locked-In Syndrome, joins the Nurses Uncorked Podcast to share an unbelievable story of survival, addiction, and a miracle recovery. Acute Toxic Progressive Leukoencephalopathy (ATPL) is a complex rare neurological condition that attacks the white matter of the brain. Sometimes referred to as a pseudo-coma, it has been described as your body becoming a prison. Jake discusses the awkward moments he overheard while in a locked-in state, the significance of nurses' interactions, and his journey to regaining communication. The conversation emphasizes the need for healthcare professionals to maintain awareness of their patients' potential perceptions and the impact of their words and actions. In this conversation, he shares his profound experiences with isolation, trauma, and recovery, emphasizing the importance of humor, positivity, and resilience. Additionally, Jake introduces his accessibility app, Ahoi, designed to help disabled individuals navigate public accessibility. The discussion concludes with insights into his podcast, Blink, where he plans to share his full story and the challenges he faces during his recovery. Thank you to our sponsor, Nurses Against Insanity! Please visit: nursesagainstinsanity.com and use promo code UNCORKED for 30% off your purchase! Thank you to our sponsor, Stink Balm Odor Blocker! Please visit: https://www.stinkbalmodorblocker.com/ and use promo code UNCORKED15 for 15% off your purchase! Thank you to our Enema Award Sponsor, Happy Bum Co. Please visit https://happybumco.com/ and use promo code NURSESUNCORKED for 15% off your first bundle. Interested in Sponsoring the Show? Email with the subject NURSES UNCORKED SPONSOR to nursesuncorked@nursesuncorked.com Help Us Keep This Podcast going and become an official Patron of Nurses Uncorked! Gain early access to episodes, patron only bonus episodes, giveaways and earn the title of becoming either a Wine Cork, Wine Bottle, Decanter, Grand Preserve, or even a Vineyard member for exclusive benefits! Benefits also include patron only Zoom parties, newsletters, shout-outs, and much more. https://patron.podbean.com/nursesuncorkedpodcast Chapters: 03:07 Jake Haendel Introduction 04:40 Understanding Locked-In Syndrome 06:15 A Pivotal Moment in Recovery 10:30 Learning to Blink 11:47 First Message Communicated 14:45 The Journey of Recovery 17:20 The Power of Humor in Recovery 22:12 Future Recovery and Uncertainty 24:50 Pain Tolerance and Coping Mechanisms 25:35 Driving Towards Independence 29:20 Reflections on Addiction and Recovery 36:15 The Impact of Choices on Life's Path 41:30 Creating Accessibility Solutions with Ahoi 48:45 Witnessing Trauma While Locked-In 59:30 Navigating Recovery and Support Systems 1:00:20 The Complexities of Hospice Care 1:07:45 Reflections on Life and Mortality 1:13:20 The Enema Award 1:16:17 Follow Jake's Journey Help support Jake Haendel's recovery: https://www.gofundme.com/f/jacob-haendels-recovery-fund Connect with Jake Haendel: Instagram: @miraclman31. https://www.instagram.com/miraclman31/# Tiktok: @miraclman31. https://www.tiktok.com/@miraclman31 YouTube: @miraclman31. https://www.youtube.com/@miraclman31 Blink | Jake Haendel Story Podcast: https://www.blinkthepodcast.com/ https://podcasts.apple.com/us/podcast/blink-jake-haendels-story/id1779813806 https://open.spotify.com/episode/1f8xqkipaynS2uqYJp1lUM?si=J9Cxj91_SJ6tZ06FQBKplQ Instagram: @blinkthepodcast https://www.instagram.com/blinkthepodcast/?igsh=MW11dGRoeXhjamozbw%3D%3D&utm_source=qr# Ahoi App: https://apps.apple.com/us/app/ahoi/id1629306597 Sources: CBS Sunday Morning Interview: https://www.youtube.com/watch?v=tFVpFyj0570 https://www.sciencedirect.com/science/article/abs/pii/S0022510X22002829 https://pmc.ncbi.nlm.nih.gov/articles/PMC7028629/ New episodes of Nurses Uncorked every Tuesday (Monday for patrons!). 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