EP 88: Surviving Locked In Syndrome: The Jake Haendel Story - Part 1

Part 1 Jake Haendel, the only known survivor of stage four Locked-In Syndrome, joins the Nurses Uncorked Podcast to share an unbelievable story of survival, addiction, and a miracle recovery. Acute Toxic Progressive Leukoencephalopathy (ATPL) is a complex rare neurological condition that attacks the white matter of the brain. Sometimes referred to as a pseudo-coma, it has been described as your body becoming a prison. Jake discusses the awkward moments he overheard while in a locked-in state, the significance of nurses' interactions, and his journey to regaining communication. The conversation emphasizes the need for healthcare professionals to maintain awareness of their patients' potential perceptions and the impact of their words and actions. In this conversation, he shares his profound experiences with isolation, trauma, and recovery, emphasizing the importance of humor, positivity, and resilience. Additionally, Jake introduces his accessibility app, Ahoi, designed to help disabled individuals navigate public accessibility. The discussion concludes with insights into his podcast, Blink, where he plans to share his full story and the challenges he faces during his recovery. Join us next week for part two! Thank you to our sponsor, Nurses Against Insanity! Please visit: nursesagainstinsanity.com and use promo code UNCORKED for 30% off your purchase! Thank you to our sponsor, Stink Balm Odor Blocker! Please visit: https://www.stinkbalmodorblocker.com/ and use promo code UNCORKED15 for 15% off your purchase! Thank you to our Enema Award Sponsor, Happy Bum Co. Please visit https://happybumco.com/ and use promo code NURSESUNCORKED for 15% off your first bundle. Interested in Sponsoring the Show? Email with the subject NURSES UNCORKED SPONSOR to nursesuncorked@nursesuncorked.com Help Us Keep This Podcast going and become an official Patron of Nurses Uncorked! Gain early access to episodes, patron only bonus episodes, giveaways and earn the title of becoming either a Wine Cork, Wine Bottle, Decanter, Grand Preserve, or even a Vineyard member for exclusive benefits! Benefits also include patron only Zoom parties, newsletters, shout-outs, and much more. https://patron.podbean.com/nursesuncorkedpodcast Chapters: 03:33 Introduction to Locked-In Syndrome 04:47 Cocktail of the Week 07:58 Understanding Locked-In Syndrome 10:00 Jake's History of Drug Abuse 13:49 The Day Everything Changed 22:40 Receiving the Terminal Diagnosis 28:10 The Experience in the Hospital 37:17 Patient Perception and Awareness 39:30 The Nurse Who Made a Difference 41:50 Near-Death Experiences and Insights 48:25 Tracking Time While Locked-In 52:20 The Role of Entertainment in Recovery 55:58 The Importance of Communicating with Patients 58:37 Enema of the Week Award 1:01:21 The Worst Enema Story Help support Jake Haendel's recovery: https://www.gofundme.com/f/jacob-haendels-recovery-fund Connect with Jake Haendel: Instagram: @miraclman31. https://www.instagram.com/miraclman31/# Tiktok: @miraclman31. https://www.tiktok.com/@miraclman31 YouTube: @miraclman31. https://www.youtube.com/@miraclman31 Blink | Jake Haendel Story Podcast: https://www.blinkthepodcast.com/ https://podcasts.apple.com/us/podcast/blink-jake-haendels-story/id1779813806 https://open.spotify.com/episode/1f8xqkipaynS2uqYJp1lUM?si=J9Cxj91_SJ6tZ06FQBKplQ Instagram: @blinkthepodcast https://www.instagram.com/blinkthepodcast/?igsh=MW11dGRoeXhjamozbw%3D%3D&utm_source=qr# Ahoi App: https://apps.apple.com/us/app/ahoi/id1629306597 Cocktail of the Week: Fat Clouds Beer by Arkane Aleworks https://www.arkanebeer.com/product/fat-clouds-2/ Sources: CBS Sunday Morning Interview: https://www.youtube.com/watch?v=tFVpFyj0570 https://www.sciencedirect.com/science/article/abs/pii/S0022510X22002829 https://pmc.ncbi.nlm.nih.gov/articles/PMC7028629/ New episodes of Nurses Uncorked every Tuesday (Monday for patrons!). Help us grow by giving our episodes a download, follow, like the episodes and a 5 ️ star rating! Please follow Nurses Uncorked at! https://www.tiktok.com/@nurses.uncorked?_t=8drcDCUWGcN&_r=1 https://instagram.com/nursesuncorked?igshid=OGQ5ZDc2ODk2ZA== https://youtube.com/@NursesUncorkedL https://www.facebook.com/profile.php?id=100094678265742&mibextid=LQQJ4d You can listen to our podcast at: https://feed.podbean.com/thenurseericarn/feed. https://podcasts.apple.com/us/podcast/nurses-uncorked/id1698205714 https://spotify.link/8hkSKlKUaDb https://nursesuncorked.com DISCLAIMER: This Podcast and all related content published or distributed by or on behalf of Nurse Erica, Nurse Jessica Sites or Nurses Uncorked Podcast is for informational purposes only and may include information that is general in nature and that is not specific to you. Any information or opinions expressed or contained herein are not intended to serve as legal advice, or replace medical advice, nor to diagnose, prescribe or treat any disease, condition, illness or injury, and you should consult the health care professional of your choice regarding all matters concerning your health, including before beginning any exercise, weight loss, or health care program. If you have, or suspect you may have, a health-care emergency, please contact a qualified health care professional for treatment. Any information or opinions provided by guest experts or hosts featured within website or on Nurses Uncorked Podcast are their own; not those of Nurse Jessica Sites, Nurse Erica or Nurses Uncorked Company. Accordingly, Nurse Erica, Nurse Jessica Sites and the Company cannot be responsible for any results or consequences or actions you may take based on such information or opinions. All content is the sole property of Nurses Uncorked, LLC. All copyrights are reserved and the exclusive property of Nurses Uncorked, LLC.