Episodes

Dec 13

"The difference between TV as comfort and TV as chaos isn't the screen—it's understanding how the changing brain experiences what's on it." Do you rely on television to help occupy your loved one's time? Does your care receiver seem agitated or anxious when the TV is on? Have you noticed them leaving the room when a show is playing or struggling to follow programs they once enjoyed? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that what soothes us as caregivers can actually cause distress for people living with dementia. In this episode, we spoke with Allyson Schrier, co-founder and president of Zinnia TV and former caregiver for her husband with frontotemporal dementia, about why regular TV can be problematic and what we can do about it. Let's explore four essential tips for managing TV time effectively. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes Additional Resources Mentioned Zinnia TV https://www.zinniatv.com Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Be Thoughtful About What’s On TV The answer isn’t to take TV away completely. We need to be thoughtful about what we put on the TV and pay close attention to how our loved ones respond. Tip 2: Target Something That Creates Curiosity Without Agitation The goal is to find programming that engages without overstimulating or causing your loved one to fall asleep (because daytime sleeping can lead to nighttime wakefulness). Tip 3: Leverage Simulated Presence Therapy The innovative approach of simulated presence therapy takes advantage of how people with dementia can experience confusion between what’s on screen and what’s actually happening — and uses it to benefit them. What is simulated presence therapy? Research has shown that when someone will only take medication or follow instructions from a specific person (like a daughter or doctor), showing them a video of that person giving the instruction can work just as effectively as having the person physically present. Tip 4: Create Engaging Alternatives On Your Own Beyond television, there are creative ways to provide visual engagement that work better with how the dementia brain processes information. Observe and Adjust Managing the television experience for someone with dementia isn’t about finding one perfect solution. What works today may not work next month as the disease progresses, and that’s reasonable. The process is about observing how your loved one responds and adjusting accordingly. The key is understanding the changing brain experiences television very differently than we do. Through being thoughtful about what’s on the screen, targeting content that engages without overwhelming, leveraging simulated presence therapy, and creating our own alternatives, we can turn TV time from a potential source of agitation into a positive opportunity for comfort and connection. Read More in This Blog here

Dec 2

Are you struggling to pull your family together to create a working support system for someone living with dementia? Do you find family members disagreeing on what needs to be done or how to help? You're not alone, and there's a path forward. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that transforming family dynamics into effective teamwork is one of the most challenging—yet most rewarding—aspects of the caregiving journey. In this episode, we spoke with Dr. Barry Jacobs, a clinical psychologist and family therapist who brings both professional expertise and personal caregiving experience to this conversation. Barry cared for his mother with vascular dementia and his stepfather with Alzheimer's disease for seven years, and he co-authored the AARP Caregiver Answer Book with his wife, psychologist Julia Mayer. This content aligns with Step 8 of our Navigating Dementia Caregiving Roadmap: Start Planning for the Next Stage of Care, particularly when building your personal support network of family and friends. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/50-family-dynamics-in-caregiving-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Barry’s website www.caregiveranswerbook.com Buy the Caregiver Answer Book on Amazon https://amzn.to/4i9V9ZL Navigating Dementia Caregiving Roadmap guide https://thecaregiversjourney.org/guides/#guides Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Transforming your family into an effective caregiving team isn’t easy. It’s worth the effort — not just for your loved one with dementia — but for every member of your family. These four tips provide a framework: Create consensus (everyone on the same page). Define an ongoing format for decision making (regular meetings with clear rhythm). Build a family caregiving plan (who does what and when). Plan to deal with conflict (don’t let disagreements become disrespectful).

Nov 18

Do you know what you need to do immediately after your loved one passes? Many caregivers don't. Are you worried about missing important tasks or feeling overwhelmed by the sheer volume of administrative, financial, and legal responsibilities? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've navigated the challenging process of handling death-related responsibilities firsthand. Between us, we've experienced the loss of multiple loved ones and learned valuable lessons about what needs to be done and when. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Full Show Notes If you are following along with our 20 step Navigating Dementia Caregiving Roadmap guide this is part of Step 20. This is the first guide listed on our guides page. There are many things that can be done ahead of time. We covered these in podcast episode 30 - End of life preplanning and blog as well as in the matching worksheet you can find on our website in the guides section called ‘End of Life Service Worksheet’. Click here to get to the Guides page, scroll down to find the sheet. Tip 1: Prioritize these things immediately after death1. Tip 2: Move to this list within the first few days and weeks Tip 3: Over the next few weeks and months - manage their estate Tip 4: Focus on the things to prioritize once the estate has been closed

Nov 4

Are you feeling overwhelmed trying to care for aging parents while raising children? Do you find yourself stretched thin between different generations, each with their own unique needs? My name is Sue Ryan. As a caregiver for loved ones with Alzheimer’s and other types of dementia, I understand the unique challenges faced by those in the sandwich generations. I recently spoke with Christy Byrne Yates, a licensed educational psychologist and author of “ Building a Legacy of Love: Thriving in the Sandwich Generation .” Christy has personally navigated the challenges of caring for aging parents while raising her own children, and she brings both professional expertise and lived experience to help families thrive during this demanding season of life. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes Additional Resources Mentioned Chirstyyates.com - https://www.christyyates.com/ Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: C — Choose Your Role as a Caregiver The first step in successfully navigating the sandwich generation is making a conscious choice to embrace your caregiving role. Many people say “I didn’t choose this.” or “I had no choice.” We always have a choice. Even not making a choice is still a choice. Tip 2: A — Address the ‘Elephants’ in the Room Successful sandwich generation caregiving requires having difficult conversations early and often. These are the ‘elephants’ dancing in every family room that everyone sees — but no one wants to discuss. Tip 3: R — Recharge Through Ruthless Self-Care Recharging takes on critical importance when you’re caring for multiple generations. Self-care isn’t selfish — it’s essential for everyone you’re caring for. Tip 4: E — Enlist Your Support Team You’re not meant to journey alone, and this is especially true for sandwich generation caregivers who face multiple competing demands. Building a comprehensive support team is essential for sustainable caregiving. Tip 5: S — Surrender Control and Embrace Grace Perhaps the most challenging aspect of sandwich generation caregiving is accepting that you cannot control everything, even though you desperately want to. If everyone could just do things your way, life would be so much easier — but that’s not reality. Read More in This Blog here

Oct 21

Have you noticed yourself feeling sad when your loved one can't remember their phone number? Do you find yourself withdrawing from friends or losing patience more easily? These feelings might be grief—and you may not even realize it's happening. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that grief doesn't only come after our loved one passes away. It's present throughout our entire caregiving journey, from the moment of diagnosis through each individual change along the way. The good news is that understanding grief—recognizing it, honoring it, and learning to move through it without getting stuck—can transform how we experience our caregiving journey. Today we're sharing six essential tips to help you navigate grief with grace and compassion. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/47-navigating-grief-throughout-caregiving-six-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Guide: Navigating Dementia Caregiving Roadmap: https://thecaregiversjourney.org/guides/ Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Read More in This Blog here

Oct 7

Have you reached the point where you're now fully responsible for your loved one's care and safety? Do you find yourself guiding others or managing all aspects of their daily needs? You've entered what we call "later on"—the final stage of the caregiving journey, and while some aspects may feel more manageable, new challenges and emotions emerge that require specific attention and planning. This final phase completes our comprehensive 20-step roadmap for dementia caregiving, covering the essential steps when you've moved beyond the messy middle into full caregiving responsibility. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Guide: Navigating Dementia Caregiving Roadmap https://thecaregiversjourney.org/guides/ Donate: https://give.cornerstone.cc/thecaregiversjourney Full show notes Additional Resources Mentioned Later On - You are now managing all aspects of their care 18. Plan for their End of Life Service: You may have done this with your loved one just after their diagnosis. If not, do this without them now: 26 minute TCJ podcast: 30. End of Life Service Preplanning TCJ blog: 30. End of Life Service Preplanning Leverage this End of Life Planning Worksheet . 19. Call in hospice. If you are not working with palliative care or a US Medicare GUIDE program organization (both of these are able to tell you when it’s time to call in hospice) Find a hospice organization. Get a doctor's referral. Schedule an initial evaluation. It’s almost never too early to get the initial evaluation, so don’t wait. Search ‘hospice’ + ‘your country’ - or in the US - ‘your state’. Scroll down until you get below the sponsored links where it says ‘Places’: Click on ‘More places’ to get a list with a map. Notice rating stars and those located around your area. Schedule an initial consultation with two so you can compare. Educate yourself on when to call in hospice: 26 minute TCJ podcast: 29. When To Call In Hospice TCJ blog: 29. When To Call In Hospice . 20. Continue your self-care. Learn about Anticipatory Grief . Read this AARP article: How To Manage Mourning a Loss Before It Happens . Honor your grief, be compassionate with yourself, reach out for support: Each of us navigates the loss of our loved one in our own time and way. It’s reasonable when your caregiving journey ends you may feel any or all of: A sense of relief because your journey has ended and your loved one is no longer suffering, Guilty at the same time because you feel relieved. A loss of your own identity, from prioritizing your loved one for so long. Not sure what to do next. If you feel lost, reach out to your family, support group, faith community, friends, professionals. Most importantly - reach out! Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways The Three Stages of the Dementia Caregiving Journey 1. In the Beginning - Your loved one receives a diagnosis. 2. The Messy Middle - You begin asserting control; this is when it gets messy! 3. Later On - You are managing all aspects of their care.

Sep 23

Have you moved beyond the initial steps of your caregiving journey and now find yourself needing to take more control while your loved one still believes they can do most things independently? Are you noticing that simple tasks are becoming increasingly challenging for them, yet they resist your help? You’re not alone! You’ve entered what we call the “messy middle” stage of your caregiving journey. We created for you the comprehensive, 20-step caregiving journey roadmap guide, Navigating Dementia Caregiving Roadmap Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes Additional Resources Mentioned Messy Middle First Steps - You recognize it’s time to assert more control 11. Focus on safety. Listen to these podcasts or read these blogs. Home Alone - Hear about the deal breakers for living home alone: 21 minute TCJ podcast: 6. Home Alone TCJ blog: 6. Home Alone . Medication - Understand strategies to safely manage medication: 20 minute TCJ podcast: 20. Medication Management TCJ blog: 20. Medication Management . Home Safety - Find approaches to the basics of home safety: 25 minute TCJ podcast: 7. Home Safety TCJ blog: 7. Home Safety Wandering - Learn ways to manage three types of wandering: outside, inside and during the night. 20 minute TCJ podcast: 4. Wandering TCJ blog: 4. Wandering . 12. Continue to prioritize your self-care. Understand how to approach the realities of self-care: 23 minute TCJ podcast: 27. The Realities of Caregiver Self-Care TCJ blog: 27. The Reality of Caregiver Self-Care . 13. Educate yourself on activities of daily living (ADLs). Prepare for changes in your loved ones ability to manage their ADLs. Listen to these podcasts or read these blogs on activities of daily living: 26 minute TCJ podcast: 9. Preparing for Incontinence TCJ blog: 9. Preparing for Incontinence 21 minute TCJ podcast: 14. Bathing and Dressing TCJ blog: 14. Bathing and Dressing 21 minute TCJ podcast: 15. Personal Care e.g. brushing teeth, trimming hair TCJ blog: 15. Personal Care 21 minute TCJ podcast: 16. Eating and Drinking TCJ blog: 16. Eating and Drinking . 14.Create a Care Plan - at minimum a Family Emergency Plan. 25 minute TCJ podcast: 33. How to Create a Care Plan TCJ blog: 33. Creating a Care Plan . Messy Middle - Continued Second Steps - It’s time for more support 15. Start or increase leveraging dementia/adult day programs. Community resource finder: Select Community Services and choose Adult Day Centers for your search. 16. Start thinking about professional help. Educate yourself: Evaluate continuing care communities (even if you never plan to use one) just in case. 33 minute TCJ podcast: 28. Home and Community Living Options TCJ blog: 28. Home and Community Living Options . Understand the types of paid caregivers: 26 minute TCJ podcast: 32. Hiring a Paid Caregiver TCJ blog: 32. Hiring a Paid Caregiver . Find an organization to help. Search online: ‘Senior Care Advisor’ + ‘your area’. Look for options yourself. Go to the Community Resource Finder sponsored by the Alzheimer’s Association and AARP. 17. Continue your education. Take the Savvy Caregiver Advanced training (this can be taken in-person or virtually). Delusions: 38 minute TCJ podcast: 23. Delusions TCJ blog: 23. Delusions . Incontinence: 26 minute TCJ podcast: 10. Incontinence Begins TCJ blog: 10. Incontinence Begins . Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Sep 9

Have you completed the first six essential steps of the comprehensive 20-step caregiving journey roadmap guide Navigating Dementia Caregiving: Your Resource Roadmap for Every Stage ? Are ready to take on more? Do you find yourself wanting to learn faster and more easily than trying to figure everything out on your own? If you answered ‘Yes’, you’re in the right place for the next phase of the dementia “In the Beginning” journey. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that building knowledge, and preparing for progression, are crucial for sustainable caregiving. We recently talked with Jenny Gay , licensed clinical social worker with Emory Integrated Memory Care , about our comprehensive 20-step caregiving journey roadmap guide: Navigating Dementia Caregiving Roadmap. In this podcast, we’re sharing steps 7–10. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/44-navigating-dementia-caregiving-roadmap-in-the-beginning-steps-7-10-alzheimers-and-other-dementias/ Additional Resources Mentioned Navigating Dementia Caregiving Roadmap Guide In the Beginning - continued Next Steps - You are ready for more 7. Continue your education: Take the Savvy Caregiver course in person or online. Read this magazine: Mayo Clinic Living with dementia: A guide to caregiving and support . Find and take a virtual dementia tour near you. In the United States, in your search engine, type ‘virtual dementia tour’ + ’your state’. For example: ‘virtual dementia tour Florida’ or, outside the US, replace your state with your country. 8. Start planning for the next stage of care. Build your personal support network: 21 minute TCJ podcast: 40. Create Your Personal Support Network TCJ blog: 40. Create Your Personal Support Network . Find and try a memory cafe (Caregivers and care receivers go together). Investigate dementia day centers (also known as adult day centers that include dementia care programs) for your care receiver. Community resource finder: Select Community Services and choose Adult Day Centers for your search. Ask your loved one’s medical team for a home safety assessment . The goal is to have someone evaluate your home for safety and dementia care needs. This is usually available through palliative care, GUIDE program, or an order from a physician. You can get a free assessment from social services with this order, or you can pay for an independent assessment from a private organization. 9. Investigate your local government community support: In the US, contact your local Area Agency on Aging. Search for yours at Eldercare.acl.gov or call 1-800-677-1116. Call and set up a screening for eligibility: They will point you to any free government services where you are eligible. Be sure to find out if you are eligible to get paid to be a caregiver. 10. Evaluate driving risks. Some US states have specific requirements for individuals with dementia to report their diagnosis and potentially undergo driving evaluations. Listen to this podcast or read this blog: 21 minute TCJ podcast: 5. Taking Away the Keys TCJ blog: 5. Taking Away the Keys. Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways The Three Stages of the Dementia Caregiving Journey 1. In the Beginning - Your loved one receives a diagnosis. 2. The Messy Middle - You begin asserting control; this is when it gets messy! 3. Later On - You are managing all aspects of their care.

Aug 26

Have you ever felt overwhelmed because you don’t know what information you need, can’t find reliable sources, or feel frustrated by too much conflicting advice? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned having a step-by-step roadmap is crucial for navigating the beginning of your caregiving journey. We recently talked with Jenny Gay, licensed clinical social worker with Emory Integrated Memory Care, about the comprehensive 20-step caregiving journey roadmap guide Navigating Dementia Caregiving: Your Resource Roadmap for Every Stage. This podcast is bringing the first six essential steps to take immediately after diagnosis. Connect with us and share your tips: Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Full Show Notes Here In the Beginning - First Steps - Right after the diagnosis 1. Choose a palliative care organization. This will likely also serve as your hospice organization later in your journey. In your search engine, type ‘Palliative Care’ + ‘the name of your country’ or, in the US ‘the name of your state’. Schedule an initial consultation with more than one so you can compare. Educate yourself on what palliative care is: 27 minute The Caregiver’s Journey (TCJ) podcast: 42. When To Call In Palliative Care 2. Create an Advance Care Plan. Get your legal documents in order and do some initial end of life preplanning with your loved ones input: Contact your attorney or an elder law attorney NAELA.org. Listen to this podcast or read this blog on elder law attorneys: 32 minute TCJ podcast: 31. Elder Law Attorneys Alzheimer’s Association legal documents overview: Leverage this End of Life Planning Worksheet. 3. Understand the financial situation. Work with a financial advisor - especially those who focus on seniors. Elder law attorneys can also advise in this area. Alzheimer’s Association resources overview of financial planning 4. Find support groups. First and foremost for you. If possible, find a support group you can attend in person: The Alzheimer's Association support group finder has support groups for a variety of types of dementia. If your loved one is interested a support group: Dementia minds has online groups for people living with dementia. Many local senior centers have support groups for your loved one to increase socialization: In the US, go to your ‘countyname’.gov website and search for a senior center. The Alzheimer’s Association 24/7 helpline in the US: 1.800.272.3900. 5. Educate yourself on early caregiving journey topics. Listen to these two podcasts or read these two blogs. Memory Loss: 29 minute TCJ podcast: 2. Memory Loss Communication: 20 minute TCJ podcast: 3. Communication – in the Beginning 6. Investigate the US Medicare GUIDE program. Listen to this podcast or read this blog: 23 minute TCJ podcast: 39. Is the Medicare GUIDE program for you Understand if your loved one may be eligible: https://www.cms.gov/priorities/innovation/guide/faqs#ben-cgs. If you think you might be eligible, find a US Medicare GUIDE program provider near you. There may be several who cover your zip code so explore options. Go here to find a GUIDE program: Enter your state. Under models select ‘Guiding an Improved Dementia Experience (GUIDE) Model’. Click ‘Display selected’. You can use the plus and minus signs in the upper right corner to zoom in closer to your area. When you find the location you want, click on the blue dot and detailed contact information will show. The Three Stages of the Dementia Caregiving Journey 1. In the Beginning - Your loved one receives a diagnosis. 2. The Messy Middle - You begin asserting control; this is when it gets messy! 3. Later On - You are managing all aspects of their care. Full blog here

Aug 12

Are you feeling overwhelmed by the complexity of dementia care? Do you find yourself wishing you had more support navigating medical decisions and planning for the future? You’re not alone - and there’s specialized help available that many caregivers don’t fully understand. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we both wish we had understood what palliative care is and how to leverage it earlier in our journeys. Unfortunately, when palliative care was first explained to us, it was explained incorrectly, and neither of us took advantage of all the great things palliative care has to offer. We recently spoke with Dawn Kolderman, a registered nurse and Senior Clinical Director of Palliative Care Services at Avow , who has more than 30 years of nursing experience with the last 20 focused on palliative and hospice care. Dawn shared invaluable insights about palliative care that we wish we had known sooner. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes Additional Resources Mentioned Avow Palliative Care Link Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Understand What Palliative Care Actually Is The first step is clearing up common misconceptions about palliative care. Palliative care is a holistic approach to a life-limiting disease. This includes dementia — which is indeed a life-limiting disease. The key difference between palliative care and hospice care: Palliative care patients are at the beginning of their journey and are still seeking aggressive, curative treatment while seeing all their providers and specialists Hospice care patients are generally at the end of their journey, no longer seeking aggressive treatment, and focusing on comfort care. Palliative care is an additional supportive layer of care that works collaboratively with all your existing medical providers. Most importantly, palliative care focuses heavily on the caregiver. Tip 2: Call Palliative Care In — Here’s How Many caregivers don’t realize how accessible palliative care is or when to call it in. The answer is simple: the earlier, the better. Tip 3: Understand the Goals of Palliative Care Palliative care has specific, comprehensive goals that address both immediate and long-term needs. Primary goals include: Relieving physical symptoms first Supporting the caregiver and family Education and collaboration Advanced care planning (ACP). This crucial component involves sitting down with the patient, caregiver, and family to discuss important decisions while your loved one can still participate in these conversations. Tip 4: What Else You Need to Know About Palliative Care There are several important aspects of palliative care that many people don’t realize. Your loved one won’t look sick. The goal is to help them live their life fully. Early intervention builds stronger relationships. The nurse navigator’s role is specifically to connect you with community resources you might not know about. Read More in This Blog here

Jul 29

Have you ever thought, "I wish I knew how to have a constructive conversation with my manager about how to align my work responsibilities and my caregiving responsibilities?" Today we're sharing strategies to help working family caregivers thrive at both work and at home. We're sharing four tips. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how caregivers often feel torn between their responsibilities at home and their professional responsibilities, which they're trying desperately to fulfill, often without support. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/41-aligning-work-and-caregiving-responsibilities-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Self-Identify and Strategically Disclose Assess your company culture first Examples of supportive company policies Disclose early in the journey Plan your conversation Frame it collaboratively Document everything Tip 2: Build Flexibility Explore flexibility options in your organization Propose pilot arrangements Consider team involvement Create backup plans Leverage technology Consider career flexibility Tip 3: Leverage Your Resources Connect with colleagues who are also caregivers Explore Employee Assistance Programs (EAPs) Look for community resources Take things off your plate Tip 4: Plan for the Unplanned Understand your benefits and protections Create a caregiving budget Explore financial resources Build an emergency fund Prepare for career transitions Read More in This Blog https://sueryansolutions.medium.com/40-building-your-personal-caregiving-support-network-9f9639e9ae87

Jul 15

“In the marathon that is caregiving, the difference between exhaustion and endurance isn’t willpower, it’s the strength of the support network we build around us.” Sue Ryan Are you feeling overwhelmed by the responsibilities of caregiving? Do you find yourself thinking, “I don’t have time to get everything done.” or “I should be able to do this myself.”? You’re not alone, and there’s a better way forward. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned building a strong personal support network is crucial for sustainable caregiving. Studies show that dementia family caregivers face overwhelming emotional challenges. Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Full Show Notes: https://thecaregiversjourney.org/40-create-your-personal-support-network-five-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned 27. The Realities of Caregiver Self-Care https://thecaregiversjourney.com/the-realities-of-caregiver-self-care-four-essential-tips-alzheimers-and-other-dementias/ 32. Navigating the Caregiver Hiring Process https://thecaregiversjourney.com/32-navigating-the-caregiver-hiring-process-five-essential-tips-alzheimers-and-other-dementias/ Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Assess Your Needs and Make a List Ask yourself: Do I have time to get everything done that needs to be done? Am I physically strong enough to handle all caregiving tasks? Do I find myself losing patience or empathy? Is my loved one struggling with activities of daily living that I can't manage alone? If you answered yes to any of these questions, it's time to ask for help. Tip 2: Create a List of Who Can Help and What They Can Do Think about all the people who have offered to help or who might be willing to help. Map your list of potential helpers to your list of needs. If multiple people can help with a particular task, list them all—it's better not to rely on just one person. Tip 3: How to Effectively Ask for Help Recognize that some people want to help your care receiver, while others want to help you. Be specific and direct about what you need and why you need it. Remember that the people on your list have likely already offered to help or have shown willingness to support you. Adapt your approach based on the person you're asking. Tip 4: When People Offer to Help, Say "Yes" Avoid these common traps: "It would be easier just to do it myself." "No one can care for my loved one like I can." "I should be able to do this myself." "I feel guilty—they have their own busy lives." Tip 5: Maintain Your Support Network and Adjust as Things Change Encouraging open communication with your support team members Being proactive about finding new support team members when needed Checking in regularly with your helpers to keep them informed and engaged Watching for signs of burnout in your helpers—they may experience caregiver fatigue too Addressing inflection points in your loved one's care needs Read More in This Blog https://sueryansolutions.medium.com/36-building-your-personal-caregiving-support-network-9f9639e9ae87

Jul 1

Is the Medicare GUIDE Program for you? Today Nancy and I are sharing insights from Amy Imes of Emory's Integrated Memory Care about the new Medicare Program GUIDE. We're going to help you understand what it is and how to know if you can leverage it. We're sharing three tips. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we are so excited to share this information with you. This is an awesome opportunity to learn about the US Medicare GUIDE Program. With big announcements happening on July 1, 2025, we're excited to give you an overview so you can understand how you might participate in the GUIDE program. Let us introduce you to Amy. Amy Imes is a gerontological nurse practitioner who is a trusted expert in geriatrics, demonstrating a deep understanding of the unique healthcare needs of the aging population. Throughout her career, Amy has played a pivotal role in building care models—that's important to the GUIDE program—and developing teams that yield superior outcomes. In addition to her clinical work, she is a member of the team at Emory's Integrated Memory Care, which is a nurse practitioner-led primary care practice for patients living with dementia. She's also the program lead for the Medicare GUIDE Program at Emory Healthcare. GUIDE stands for Guiding an Improved Dementia Experience. It is a US Medicare pilot program that aims to provide better support and resources for persons living with dementia and their caregivers. Which is awesome. You should know that it's a pilot program. Please let's all support it because we need to prove that this pilot program which focuses on helping dementia caregivers actually works so that this can become a standard part of Medicare and can also be expanded globally. It would be ideal for the US to prove it's worth so that we can help other countries take advantage of these kinds of support because they're watching and they're aware of it. This is a groundbreaking program that is being offered around the country. So definitely we want to show up and show out as people tend to say sometimes. As of today, July 1st, there are approximately 390 programs across the country that have been vetted by Medicare to provide this program, and so it is really going to have an impact for persons living with dementia. Full Show Notes https://thecaregiversjourney.org/39-is-the-medicare-guide-program-for-you-three-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned To find a guide program near you: Go to this CMS website page and put in your state and under models select ‘Guiding an Improved Dementia Experience (GUIDE) Model’ Then click ‘Display selected’ You can use the plus and minus signs in the upper right corner to zoom in closer to your area and find the program closest to you. There may be several who cover your zip code so explore options Emory Integrated Memory Care: https://www.emoryhealthcare.org/centers-programs/integrated-memory-care-clinic Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways What the Medicare GUIDE Program Offers One-on-one support and coaching by dementia prevention providers Care navigation through an often difficult and chaotic healthcare system Education and training resources for caregivers Respite care Tip 1: Understand Your Eligibility Tip 2: How to Find a GUIDE Program Near Me Tip 3: How to Integrate GUIDE with Your Existing Medical Team About Emory's Integrated Memory Care GUIDE Program For those in the Atlanta area, Emory's Integrated Memory Care is led by nurse practitioners who are all dementia specialists and geriatric specialists. They bring everything under one umbrella with geriatric psych, licensed social workers, and RNs on their team. This eliminates doctor hopping and multiple visits. Read More in This Blog here

Jun 17

Do you wish you could get a good night’s sleep? We do too! We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we appreciate the insights Dr. Glenna Brewster, PhD, RN, FNP-BC , Assistant Professor at Nell Hodgson Woodruff School of Nursing at Emory University , shared for all of us about her sleep study titled SLEEPMATE, and how we can all create good sleep habits. Dr. Glenna Brewster’s background is impressive, and her passion for good sleep is inspiring! In addition to her responsibilities as a professor, she is a nurse scientist, family nurse practitioner, and she leads the Emory University Mind at Rest research team , which develops and tests practical, evidence-based programs to reduce sleep problems and improve health outcomes for people living with memory loss or dementia and their caregivers. Good sleep isn’t just for your care receiver, this is for you too! According to Dr. Brewster: Sleep problems, especially if you’re a caregiver or person living with cognitive impairment, are significant. You might have a hard time falling asleep, wake up multiple times during the night, or notice that as the disease progresses there is daytime sleepiness. Sleep disturbances are prevalent both in care partners or caregivers and people living with cognitive impairment. Dr. Brewster has developed the SLEEPMATE study for caregivers and people living with cognitive impairment and types of dementia. It’s a six-week virtual intervention where you participate together. The study examines whether the intervention is feasible, acceptable, and if it improves sleep outcomes. At the end of this blog post is the link you can use if you’re interested in participating in this virtual study. This topic is incredibly valuable for us as caregivers. We’ve learned the need for quality sleep — and what not having it is like. We’ve also learned that we’re often so focused on quality sleep for our care receiver, we don’t prioritize our own sleep as caregivers! One important take-away from Dr. Brewster for caregivers it’s so easy not to consider — or to lose sight of: Your quality of sleep is every bit as important — and sometimes even more — important than your care receiver’s. Full Show Notes here Additional Resources Mentioned Dr. Glenna Brewster , assistant professor, shares her innovative study designed to improve the sleep outcomes of persons living with preclinical and early-stage dementia and their caregivers. Brewster is also founder of the Mind at Rest research lab. For more information about joining this study , visit mindatrest.org/contact/ . Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Practice Good Sleep Hygiene Tip 2: Limit Daytime Naps Tip 3: Make Your Bedroom Like a Cave Tip 4: Schedule Worry Time Earlier in the Day Tip 5: Keep Your Bedroom for the Three S's About the SLEEP-MATE Study Dr. Brewster's study is recruiting pairs. The person who is receiving the care doesn't have to be diagnosed with dementia, just have a complaint or an experience of cognitive changes. Caregivers or care partners—different people want to be called different things based on where in the dementia journey they are—both people participating, both having some type of sleep disturbance or sleep problems. That could be difficulty falling asleep, difficulty staying asleep (meaning that you fall asleep and then you wake up, and when you wake up, you have a hard time falling back asleep), or significant daytime sleepiness or some other type of impairment during the day. It's for people who are living within the contiguous US. Each of you gets an honorarium for participating as a thank you for your time and investment in participating in the study. If you have any questions or want to find out more about the study, please reach out at 404-712-9164 or you can check out their lab's website at www.mindatrest.org .

Jun 10

"When it comes to caregiving, the assumption about being able to take what we've learned and just naturally grow is not always going to be true." How do you think you would feel if you were caregiving for a second or third person living with dementia? Would you feel more prepared because of your previous experience? If you answered "yes," you might be surprised by what research is revealing about experienced caregivers. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, both of us have been caregivers more than once, and we recently learned about enlightening research from Dr. Emily Mroz, a researcher at Emory University's School of Nursing who coined the phrase "experienced caregiver." Her research is shedding light on a common phenomenon that affects millions of families: providing dementia care for multiple loved ones throughout adulthood. Dr. Mroz is a tenure-track assistant professor and social behavioral scientist who studies how people think, feel, and act within their social and personal situations. With training in developmental psychology, gerontology, geriatrics, and public health, she uses her multidisciplinary perspective to develop resources and interventions that support people living with serious illness, family caregivers, and those who are bereaved. Through her research and interviews with caregivers, Dr. Mroz has identified crucial insights about experienced caregivers that challenge common assumptions and offer practical guidance for those stepping into the caregiving role again. Full Show Notes https://thecaregiversjourney.org/37-studying-experienced-caregivers-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Dr. Emily Mroz , assistant professor and social-behavioral scientist, discusses her research on improving how patients and caregivers navigate serious illnesses such as dementia, end-of-life care and bereavement. Link to study flyer here To join this study, visit survey.qualtrics.emory.edu/jfe/form/SV_cYfshxWcThSSV5s . Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Avoid Assumptions About Who Is Prepared to Be a Dementia Caregiver Tip 2: Assess How Prepared You Really Feel Tip 3: Don't Hesitate to Get Involved in Skills Training and Support Groups Tip 4: Share Your Stories with Grace, Not Judgment The Importance of Research for Experienced Caregivers Dr. Mroz's study is part of a growing recognition that experienced caregivers represent a significant population with unique needs and strengths. Her virtual research study involves participants completing surveys about their caregiving experiences and sharing their stories to help researchers understand the differences between new and experienced caregivers. Study details: Focuses on people currently in active caregiving roles, including those early in their journey with a second or third care recipient Participants receive a $50 gift card honorarium Sessions are conducted virtually and take about one to two hours Can participate alongside other dementia caregiver research studies Research is crucial for developing resources specifically tailored to experienced caregivers Read More in This Blog here

Jun 3

“An educated and confident family caregiver who knows what to do in their role is really the absolute best medicine for the care receiver.” Dr. Carolyn Clevenger Do you know extensive research specifically focused on dementia caregivers is being conducted? Are you aware of innovative studies designed to equip family caregivers with navigation skills? Now you will, and you’ll be learning about valuable opportunities to strengthen your caregiving journey. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we are continuously learning new ways to support our health and well-being, and that of our care receivers. We recently discovered the groundbreaking dementia caregiver research, the CANDO Study, Dr. Carolyn Clevenger , DNP, RN, GNP-BC, AGPCNP-BC, FAANP, FGSA, FAAN, Professor at the Emory University Nell Hodgson Woodruff School of Nursing is conducting. When most people think about dementia research, they focus on studies involving people living with dementia or pharmaceutical treatments. This crucial area of research focuses on supporting the family caregivers themselves. Dr. Clevenger is a professor and gerontological nurse practitioner who is nationally recognized as an education leader in advanced practice nursing and geriatrics. Carolyn founded, and directs, the comprehensive dementia care model called Integrated Memory Care (IMC), which provides memory and primary care in a single integrated approach for people living with dementia and their care partners. Full Show Notes https://thecaregiversjourney.org/36-learn-to-navigate-support-systems-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Dr. Carolyn Clevenger , a nationally recognized educational leader in advanced practice nursing, geriatrics and gerontology, shares her groundbreaking work on dementia family caregiver education programs that teach new caregivers how to transition into the role and navigate various support systems. For more information about joining this study , visit scholarblogs.emory.edu/CAN-DO/ . Savvy Caregiver course: Available face-to-face or online (in-person version includes support group benefits) “ Best Programs for Caregivers ” website: A collaboration between the Benjamin Rose Institute on Aging and Family Care Alliance featuring only research-proven programs. Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Additional Resources Mentioned Takeaways Tip 1: Understand Different Levels of Care Early Home-Based Care Community-Based Programs Residential Care Options Key considerations: Each level has different eligibility requirements and payment structures Availability varies by state—some follow federal guidelines, others have state regulations People often wait until they desperately need memory care but try to access assisted living instead, creating unnecessary stress Tip 2: Stay Ahead of Financial Challenges Protect your assets while maintaining oversight Understand the early warning signs Watch for judgment impairment issues Tip 3: Leverage Legal Support from Elder Law Experts What sets elder law attorneys apart Specialized dementia expertise Long-term benefits Tip 4: Take Evidence-Based Classes What makes evidence-based courses effective Measurable outcomes The CAN-DO Study: Training Caregivers as Navigators Dr. Clevenger's current research project, CAN-DO (Caregiver As Navigator Developing Skills Online), trains family caregivers to navigate four critical systems: healthcare, financial, legal, and family systems. Course structure: Six-week online course following three families through different types of dementia Each day presents real-life scenarios with appropriate responses and preventive measures Videos from subject matter experts including elder law attorneys, investigators, estate planners, and healthcare providers

May 20

Is your loved one in a memory care community, or are you considering moving them into one? Understanding how to build a collaborative relationship with the care team is crucial for ensuring the best outcomes for your loved one. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that creating a true partnership with care community staff can dramatically improve quality of care and reduce stress for everyone involved. We recently spoke with James Lee, CEO and co-founder of Bella Groves, an award-winning memory care community. With over 17 years of experience in senior living and memory care, James has developed valuable insights on how to transform what is often an adversarial relationship between family caregivers and professional caregivers into a collaborative partnership. Full Show Notes https://thecaregiversjourney.org/35-build-a-partnership-with-your-care-community-six-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Assess the Overall Fit When looking for a memory care community, many families focus on practical aspects like location, price, and amenities. While these factors are important, James suggests that philosophical alignment and rapport with the management team are even more crucial for long-term success. When evaluating potential communities, James recommends shifting your mindset from "us versus them" to "us collectively versus dementia." This perspective can transform the relationship from the beginning. Tip 2: Embrace the Community Aspect Moving your loved one from home to a community setting represents a fundamental shift in their care environment—from one-on-one care to being part of a group. Tip 3: Acknowledge Your Role Has Changed When your loved one moves into a care community, your role shifts from being the primary caregiver to being a care partner working alongside professional caregivers. Tip 4: Recognize That the Diagnosis Will Progress A critical aspect of the care partnership is understanding that your loved one's condition will continue to change over time. In fact, by the time someone moves into a memory care community, they're often in the steeper part of their dementia journey where changes happen more rapidly. Tip 5: Acknowledge Your Grief The dementia journey involves ongoing loss, a phenomenon Sue calls "drip grief." As your loved one's condition progresses, you experience new losses almost daily—abilities that disappear, memories that fade, personality changes that emerge. Tip 6: Engage with the Community Caregiving Team The families whose loved ones have the best quality of life tend to be those who actively engage with the care team. This engagement goes beyond basic communication to building genuine relationships with the people caring for your loved one. Building a True Partnership Creating a collaborative relationship with your loved one's care community team isn't just about being nice—it's about achieving the best possible outcomes for your loved one with dementia. By reframing the relationship from "us versus them" to "us collectively versus dementia," you can transform what is often an adversarial dynamic into a true partnership. As James explains, "You are your loved one's expert, we are dementia experts. And the two together give us the best chance to get this right." Read More in This Blog here

May 6

Adding a new caregiver to your support team can be a challenging transition, whether they're coming into your home, assisting your loved one who lives alone, or joining the care team in a memory care community. This transition can be particularly difficult for those caring for loved ones with Alzheimer's or dementia, as changes in routine can cause confusion and resistance. If your loved one doesn't think they need help (and let's be honest, many don't), don't give up too quickly. Be patient and allow the process time to unfold. As one experienced caregiver shared, "He told the new caregiver for at least the first couple of weeks, every time she came, 'You need to go home.' She would just smile at him and say, 'Well, I'm not going home just yet.'"

Apr 22

Are you prepared for others to take care of your loved one? Do you have a care plan in place? Having a comprehensive care plan is one of the most important tools a caregiver can create — not just for emergencies, but for everyday peace of mind. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned the importance of creating a care plan for our loved one. We spoke with Amanda Lukoff , co-founder and CEO of Eleplan , about what a care plan is and how to create one that works for your unique situation. Amanda's journey to creating Eleplan was deeply personal. Her brother Liam, who has autism, is her "North Star" and the inspiration behind her career path, including going to law school for special education law. Through observing her parents' caregiving journey with Liam, Amanda recognized the need to capture all the knowledge that lived in her parents' heads so that others could provide care that truly honored who Liam is as a person. Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Additional Resources Mentioned Episode 32: Navigating The Caregiver Hiring Process https://thecaregiversjourney.com/32-navigating-the-caregiver-hiring-process-five-essential-tips-alzheimers-and-other-dementias/ Eleplan Website: https://www.eleplan.com/ Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Full Show Notes https://thecaregiversjourney.com/33-how-to-create-a-care-plan-five-essential-tips-alzheimers-and-other-dementias Takeaways Tip 1: Start with the Basics The first step in creating a care plan is to document the essential information that would allow someone to provide short-term care (even for just 30 minutes) while you step out. This includes: Emergency contacts Medications and dosages High-level meal preferences Allergies Relevant medical conditions Tip 2: Outline Preferences and Daily Routines Beyond the basics, a good care plan should capture what makes your loved one unique—their preferences, personality traits, and daily routines. Your care plan should include: Likes and dislikes Daily schedule and routines Bedtime and morning rituals Behavioral patterns Emotional triggers (both positive and negative) Tip 3: Document What to Do in an Emergency Crisis situations demand clear instructions. Your care plan should outline: What constitutes an emergency for your loved one When to call 911 vs. other resources Who to contact and in what order Special instructions for EMTs or ER staff Location of important medical documents Tip 4: Collect Key Contacts and Documents Gathering important documents in one accessible location is critical for seamless care. This includes: Insurance cards Healthcare directives Power of Attorney documents Guardianship forms Medical history and medication lists Tip 5: Keep Everything Accessible and Current A care plan is only effective if it's up-to-date and easily accessible. Amanda frames this with an important question: "Do I have a system that is as dynamic as the needs of my loved one and the ever-changing piles of documents and information?" Whether you're using a physical binder, shared digital documents, or a specialized platform like Eleplan, the key is having a system that makes updates easy and ensures the information is available whenever and wherever it's needed. Read More in This Blog

Apr 8

When the time comes to bring professional caregiving support into your loved one’s life, the process can feel overwhelming. Whether you’re hiring a caregiver for home care or to complement care in a community setting, understanding how to find, evaluate, and select the right person is crucial for both your peace of mind and your loved one’s well being. We are Nancy Treaster and Sue Ryan, we’ve developed five essential tips for hiring a paid caregiver, based on real experiences and practical advice from caregiving experts. These insights will help you navigate this important transition with confidence and clarity. Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Full Show Notes https://thecaregiversjourney.com/32-navigating-the-caregiver-hiring-process-five-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Episode 5: Home Alone https://thecaregiversjourney.com/leaving-your-care-receiver-alone-six-essential-tips-alzheimers-and-other-dementias/ Episode 28: Home and Community Living Options https://thecaregiversjourney.com/time-for-a-change-home-and-community-living-options-five-essential-tips-alzheimers-and-other-dementias/ Episode 30: Elder Law Attorneys https://thecaregiversjourney.com/they-know-what-we-dont-elder-law-attorneys-four-essential-tips-alzheimers-and-other-dementias/ Episode 33. How To Create a Care Plan: Five Essential Tips / Alzheimer’s and Other Dementias https://thecaregiversjourney.com/33-how-to-create-a-care-plan-five-essential-tips-alzheimers-and-other-dementias Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Assess Your Loved One’s Needs Before you begin searching for a caregiver, it’s important to thoroughly understand what kind of support your loved one requires. This assessment will guide all your subsequent decisions about the type of caregiver, frequency of care, and specific qualifications needed. Consider these key areas when assessing needs: Activities of Daily Living (ADLs) Medical Needs Household Management Tasks Safety Concerns Transportation and Mobility Companionship Needs Tip 2: Determine the Type of Caregiver and Frequency Needed There are three main categories of paid caregivers, each with different training levels and capabilities: Companion Care Certified Nursing Assistant (CNA) Skilled Nursing Tip 3: Understand Your Financial Resources Review Your Financial Resources Savings and investment accounts Long-term care insurance policies Regular income sources Family financial contributions. Explore Available Benefits Medicare Medicaid Veterans Benefits Consider Family Contributions Tip 4: Decide Between Agency or Private Hire When you work with a caregiving agency: They Handle Administrative Tasks They Provide Backup Coverage They Offer Training and Supervision They Assume Liability Private Hire Benefits It’s Usually Less Expensive You Have Complete Control There’s Often More Flexibility You May Find Through Word-of-Mouth Private Hire Challenges You’re the Employer No Backup Coverage Limited Screening Resources Tip 5: Evaluate potential caregivers thoroughly Key Questions for Interviews Scheduling and Availability Qualifications and Experience Approach to Care Communication Style Background Checks and References Set Clear Expectations Especially for private hires, establish from the beginning that the arrangement is on a trial basis. Include Your Loved One When Appropriate Next Steps: Care Plans and Integration Develop a written plan Develop an Integration Strategy Read More in This Blog here

Mar 25

We don't know what we don't know. But elder law attorneys do, and their expertise can be transformational for families facing aging-related challenges. Whether you're dealing with a recent diagnosis, planning for potential long-term care needs, or simply trying to prepare for the future, understanding how and when to work with an elder law attorney can make all the difference in your journey. In this episode, we'll explore four essential tips for working with elder law attorneys, based on insights from Beth Prather, a board-certified elder law attorney with 32 years of experience, and Courtney Lovejoy, an elder law attorney with a Master of Laws in elder law. Their expertise in Medicaid planning, VA benefits, estate planning, probate, trust administration, and guardianship offers valuable perspective for anyone navigating the complex legal landscape of aging and caregiving. Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Full Show Notes https://thecaregiversjourney.com/they-know-what-we-dont-elder-law-attorneys-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned www.NAELA.org The National Academy of Elder Law Attorneys website has a searchable directory. "They have a really good search function where you can type in your zip code and find elder law attorneys within a certain radius," Courtney notes. State-specific organizations : For example, Florida has the Academy of Florida Elder Law Attorneys ( www.AFELA.org ). Beth Prather : https://www.gskattorneys.com/attorneys/beth-a-prather/ Courtney Lovejoy : https://www.gskattorneys.com/attorneys/courtney-van-emmerik-lovejoy/ Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: How to Find an Attorney Who Specializes in Elder Law Finding the right elder law attorney requires more than just a quick Google search. Here's how to identify professionals with genuine expertise in this specialized field: Look for Specialized Credentials Professional credentials can be helpful indicators of specialized knowledge in elder law: Board Certification: I Master of Laws (LLM) in Elder Law: Ask the Right Questions How many Medicaid applications did they file last year? What percentage of their practice focuses on elder law? Do they handle guardianships, Medicaid planning, or VA benefits cases regularly? Use Reliable Resources to Find Specialists NAELA.org: State-specific organizations: For example, Florida has the Academy of Florida Elder Law Attorneys (AFELA.org). Personal referrals: Tip 2: Prioritize These Legal Documents and Planning Tools Once you've found an elder law attorney, certain planning tools should take priority: Comprehensive Durable Power of Attorney Consider Long-Term Care Insurance Limit or Avoid Gifting Avoid DIY Planning Common DIY mistakes include: Adding children to bank accounts or property titles Giving away assets based on outdated or incorrect advice Trying to "hide" assets from Medicaid Tip 3: Understand Medicaid and VA Benefits Options A significant part of elder law involves helping clients navigate government benefits for long-term care: Tip 4: Use This Time to Address Other Important Legal Matters Review Beneficiary Designations Create an Asset Inventory Consider Account Consolidation Address Healthcare Decision Documents Be Cautious About Adding Others to Accounts or Deeds Discuss End-of-Life Preferences

Mar 11

When you’re grieving, the last thing you need to be doing is planning a service. Pre-planning allows you to make only two decisions when death occurs: what day and what time the service will be held. Everything else can be arranged in advance, giving you the space to honor your loved one while processing your grief. We are Sue Ryan and Nancy Treaster, and we recently spoke with Greg Cannon , who has more than 45 years of experience in the funeral profession , including as a funeral director. Greg shared his expertise on planning ahead for a loved one’s service, offering eight essential tips that can make all the difference during a difficult time. Rate, Subscribe, Share the Podcast and Share Your Tips on Social Media! Please click here to review, follow, subscribe to and share our podcast. Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Full Show Notes https://thecaregiversjourney.com/finding-peace-in-preparation-end-of-life-service-preplanning-eight-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned End of Life Service Worksheet here Takeaways Tip 1: Choose a Funeral Home Select a funeral home that will meet your needs. This choice may be based on location, previous experience with them, or their reputation. Tip 2: Decide on Burial or Cremation This fundamental decision shapes many subsequent choices. If choosing burial, consider: Cemetery location If the person is married, reserving an adjoining space for the spouse Whether traditional burial or green burial options are preferred. For cremation, consider: Whether the cremation will happen before or after the service. What will be done with the cremated remains afterward. In both cases, you’ll need to decide what clothing the person will wear. Greg advises bringing a complete set of clothing, including undergarments and outerwear. Shoes are optional and often difficult to put on, but can be included if they’re meaningful. Tip 3: Decide on the Type of Service Funeral services have evolved beyond the traditional. Traditional Service (for either burial or cremation) Memorial Service Green Burial Direct Cremation or Direct Burial Tip 4: Choose a Location The location for the service could be: A funeral home A place of worship A location meaningful to the deceased Tip 5: Prepare the Obituary Rather than writing the complete obituary under time pressure, prepare by: Compiling all necessary information ahead of time Creating a comprehensive list of family members to include Selecting a photo or photos to accompany the obituary. Tip 6: Create a Notification Tree Decide ahead of time: Who needs to be notified of the death Who will notify whom Create a “notification tree” so you’re not responsible for contacting everyone. Tip 7: Plan the Service Consider these elements and include your care receiver as much as possible: Officiant: Choose the clergy or person who will lead the service Eulogies: Decide who will deliver them and provide guidance Music: Select meaningful songs or hymns Readings: Choose scripture, poetry, or other readings Personal touches: Include memorabilia, photos, or items that represent the person’s life. Consider alternatives to traditional floral arrangements: Family quilts Meaningful objects (like golf clubs for an avid golfer) Photos. Tip 8: Plan the Gatherings Consider various types of gatherings: Private family dinner before the service Reception after the service for all attendees Informal gathering at home with close family and friends.

Feb 25

As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that there are many misconceptions about hospice care. Today, we're joined by hospice nurses Nancy Heyerman and Brenda Kizzire to help clarify what hospice really is and when to consider it. Through their extensive experience, they've developed four essential tips to help you navigate this important transition in your caregiving journey. Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Full Show Notes https://thecaregiversjourney.com/when-to-call-in-hospice-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned The Hospice Care Plan website here Frailty scale here The Hospice Care Plan booklet here The Hospice Care Plan YouTube channel here YouTube video - End of life for a person with dementia here Takeaways 1. Access Your Care Receiver Using the Frailty Scale One of the most important tools in determining when hospice might be appropriate is the frailty scale. This helps track changes that might indicate a need for hospice care. What to Monitor: - Weight loss patterns - Ability to feed themselves - Changes in mobility (e.g., walking distance decreasing) - Transition from walking to wheelchair - Changes in activities of daily living - Increased anxiety or behavioral changes - Decreased verbal communication - Mental status changes 2. Start Documenting This tip might seem obvious, but proper documentation can make a significant difference in getting hospice care approved. How to Document: - Keep a calendar with regular weight measurements - Note changes in mobility and daily activities - Use your phone to track behavioral changes - Record any falls or incidents - Track medication changes and effectiveness - Document observations from other family members and caregivers Important Note: Many primary care providers may not be familiar with the latest hospice criteria. Your documentation helps build a case for hospice evaluation and provides concrete evidence of decline. 3. Research Hospice Organizations Don't wait until you're in crisis to start researching hospice organizations. Start your research early and be prepared. What to Research: - Available hospice organizations in your area - Their team structure and approach to care - Response time for evaluations and care - Experiences of other families - Specific services offered - Their experience with dementia patients Additional Tips: - Ask for recommendations from other caregivers - Read reviews and testimonials - Consider visiting their facilities if applicable - Ask about their approach to dementia care - Understand their after-hours support system 4. Request a Hospice Evaluation Don't be afraid to ask for a hospice evaluation, even if you're not sure your loved one qualifies. Steps to Get an Evaluation: 1. Ask your primary care provider for a hospice evaluation 2. If met with resistance, emphasize your goals of care 3. Frame it as establishing a baseline if needed 4. Remember that two physicians must agree - your primary provider and the hospice doctor 5. Be prepared to be a "squeaky wheel" if necessary The Hospice Care Plan: A Valuable Resource Nancy and Brenda have created "The Hospice Care Plan: A Path to Comfort," a comprehensive guide that helps families navigate hospice care. This resource includes: - Detailed symptom management guidelines - QR codes linking to instructional videos - Space for individualized care plans - Information about the hospice team - Practical tips for daily care Read More in This Blog here

Feb 9

As caregivers for our loved ones with Alzheimer's and other types of dementia, we often face the challenging question: "Is it time to change my care receiver's living situation?" We are Nancy Treaster and Sue Ryan, and through our experiences, we've developed five essential tips to help you navigate this complex decision-making process. Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Full Show Notes https://thecaregiversjourney.com/time-for-a-change-home-and-community-living-options-five-essential-tips-alzheimers-and-other-dementias/ Takeaways 1. Understand Your Financial Resources This foundational step requires a thorough assessment of both current and future financial resources. Professional Resources to Consult: - Financial advisors (especially those specializing in senior care) - Elder care attorneys - Government program specialists Income Sources to Consider: - Care receiver's savings - Pensions - Long-term care insurance - Public health insurance (Medicaid in the US) - Social Security disability benefits - Family contributions Expenses to Evaluate: - Home modifications - Safety adjustments - In-home caregiving costs - Day program fees - Potential lost income if reducing work hours - Care community costs 2. Research Care Options There are three main categories of care options to evaluate: Non-Residential Options: - Respite programs - Memory cafes - Day programs In-Home Options: - Professional caregiving services - Government programs (VA benefits, Medicare services) - Family caregiver arrangements Care Communities: - Memory care specific facilities - Communities with memory care units - Different care models and staffing levels - Waiting list considerations 3. Assess Home Safety This evaluation should include multiple perspectives: Medical Assessment: - Get an updated medical evaluation - Discuss current and future safety risks - Request occupational therapy assessment Key Safety Considerations: - Wandering risk - Cabinet and door safety - Mobility challenges - Fall prevention - Depth perception issues - Stairs and accessibility - Emergency services access 4. Evaluate Medical Needs Current and Future Medical Considerations: - Impact of multiple diagnoses - Care complexity - Required medical procedures - Medication management - Physical care requirements 5. Prioritize Wellbeing for Both Care Receiver and Caregiver This final tip focuses on quality of life considerations for everyone involved. Socialization Needs: - Care receiver's social preferences - Community engagement opportunities - Caregiver isolation prevention - Balance of stimulation and comfort Safety and Emotional Considerations: - Physical safety for both parties - Emotional wellbeing - Caregiver burnout prevention - Managing aggressive behaviors - Personal boundaries Making the Final Decision: - Consider all evaluation points - Involve family members - Maintain awareness of available options - Stay connected with potential care communities - Be prepared to act when needed

Jan 28

When you’re caring for a family member with Alzheimer’s or other type of dementia, you’ve probably heard countless times: “Don’t forget to take care of yourself.” While well-intentioned, this advice can feel overwhelming when you’re already juggling multiple responsibilities! Through our conversation with Elizabeth Miller, we’ve learned that effective self-care is about more than just general advice — it’s about finding practical, sustainable ways to maintain your own wellbeing while caring for others. Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Full Show Notes https://thecaregiversjourney.com/the-realities-of-caregiver-self-care-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Happy Healthy Caregiver website here 20 for 2025 Funsheet here Self-Care at Sea cruise here Happy Healthy Caregiver podcast here Just for You daily journal here Takeaways Tip 1: Give Yourself Permission One of the biggest barriers to self-care is the guilt that comes with taking time for yourself. Many caregivers feel it's selfish to focus on their own needs when their care recipient is struggling. Tip 2: Think Broadly About Self-Care Self-care encompasses much more than just physical health. Elizabeth identifies eight key categories: - Practical self-care (like organizing your desk) - Emotional self-care (therapy, journaling) - Social self-care (connecting with others) - Spiritual self-care (following your spiritual path) - Intellectual self-care (learning new things) - Financial self-care (budgeting, planning) - Professional self-care (career development) - Physical self-care (exercise, nutrition) Tip 3: Prioritize and Schedule Self-Care The best self-care strategy is simply putting it on your calendar. Elizabeth recommends creating a "20 for 25" list—twenty things you want to do this year that bring you joy, energy, or peace of mind. These can range from small activities like learning a new game to bigger plans like taking a vacation. Tip 4: Give Yourself Credit Instead of focusing solely on to-do lists, create a "ta-da" list celebrating what you're already doing right. Remember that self-care includes basic activities you're already doing: - Getting sleep - Preparing meals - Basic hygiene - Managing finances - Taking breaks Read More in This Blog here

Jan 14

When you’re caring for a family member with Alzheimer’s or another type of dementia, worries can keep you up at night — but they don’t help you . Through our conversation with Denise Brown, we’ve learned having a solid emergency plan helps calm your worries, reduce your fears, and provide you with peace of mind. Full Show Notes https://thecaregiversjourney.com/are-you-ready-for-an-emergency-get-a-plan-four-essential-tips-alzheimers-other-dementias/ Additional Resources Mentioned Slides used in episode here Caring Our Way community here Family Emergency Plan space on Caring Our Way here Schedule of free planning sessions with consultant here Takeaways Tip 1: Name Your Worry The first step in creating an emergency plan is identifying specific concerns that keep you up at night. Denise's Family Emergency Plan includes eight categories of common caregiver worries: - Delays - Health emergencies - Hospitalizations - Behavioral challenges - Transportation issues - Medication management - Care coordination - Communication needs Tip 2: Develop Your Plan Once you've identified your concerns, it's time to create actionable plans. Remember that plans can take many forms: - Written instructions - Maps or diagrams - Medication lists - Contact information - Behavior management strategies - Transportation arrangements Tip 3: Communicate Your Plan Effective communication ensures everyone involved understands their role. Consider multiple methods of sharing information: - Written letters or emails - Shared online documents - In-person meetings - Physical copies in accessible locations - Regular updates and reminders Tip 4: Update Your Plan Regularly Emergency plans should evolve as circumstances change. Watch for these common triggers that signal the need for updates: - Changes in your care recipient's condition - New diagnoses or medications - Shifts in your own availability - Family member changes - Service provider updates - Transitions to palliative or hospice care About Our Guest Expert Denise Brown founded the Caring Our Way community to support family caregivers. The community offers free resources, including: - Monthly planning sessions - Family Care Manager course - Downloadable planning templates - Online support spaces - Access to certified caregiving consultants You can find these resources at caringourway.com. Read More in This Blog here

Nov 11

Dec 30, 2024

When a parent is diagnosed with Alzheimer’s or another type of dementia and the other parent begins their caregiving journey, the dynamic between the caregiving parent and child shifts dramatically. Through our experiences and conversations with families navigating this transition, we've developed six essential tips to help you support your parent as they take on the role of primary caregiver. Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Full Show Notes Takeaways Tip 1: Insert Yourself into the Journey The first step is making your presence and support known while respecting your parent’s role as primary caregiver. Key points: Increase visit frequency or phone calls Position yourself to observe daily dynamics Avoid judgment of decisions Listen more than advise Show support without taking over Tip 2: Monitor Caregiver Health Ensuring your caregiving parent maintains their own health is crucial for sustainable care. Key points: Ask specific questions that can’t be answered with “I’m fine” Monitor medical appointments Discuss challenges they’re facing Watch for signs of stress or exhaustion Encourage preventive health care Tip 3: Provide Emotional Support Help your parent maintain connections and avoid isolation while caregiving. Key points: Listen actively to what’s said and unsaid Validate feelings before offering solutions Maintain normal conversations beyond caregiving Encourage outside activities and interests Help research support resources Tip 4: Share the Load Even from a distance, there are many ways to help manage caregiving responsibilities. Key points: Handle digital tasks remotely Coordinate with local friends and family Create support networks Help with scheduling and planning Tip 5: Participate in Care Details Get involved in both practical and legal aspects of care management. Key points: Obtain necessary legal documents early Secure medical power of attorney Address privacy laws and documentation Arrange financial access if needed Support decision-making processes Tip 6: Support Through Grief Grief occurs throughout the journey, not just at its end. Key points: Acknowledge “drip grief” throughout the journey Help maintain connections during caregiving Support through the final transition Assist with post-care legal matters Be sure to process your own grief Special Considerations When creating support systems: Develop emergency plans early Create shared care plans Document important information Keep contact lists updated Maintain flexibility in arrangements About Our Guest Expert This episode featured Andrew Phipps from Empathy Unbound, who shared his personal experience supporting his father as he cared for Andrew’s mother with dementia. Andrew created Empathy Unbound to promote the idea that empathy is one of our greatest superpowers — one that we often don’t recognize or use enough. As Andrew explains, “The ability to take on the experience or position of another to help understand them is invaluable. Putting ourselves in someone else’s shoes helps us understand their situation in a way we couldn’t otherwise.” You can find the Empathy Unbound podcast wherever you get your podcasts. Read More in This Blog here

Dec 17, 2024

"I discovered a growth on his gum that was only slightly smaller than a marble. That's when I learned dental care involves much more than just brushing teeth." As caregivers for our loved ones with Alzheimer's and other types of dementia, we're continuously learning and adapting our care approaches. Through recent experiences, we've discovered important new aspects of dental care that we believe could help other caregivers on their journey. Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Additional Resources Mentioned Other episodes mentioned Episode 15 here Large cell granuloma picture here These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Oral swabs here Super soft toothbrush here Fresh Breath mouthwash here Full Show Notes here https://thecaregiversjourney.com/dental-care-update-three-new-tips-alzheimers-and-other-dementias/

Dec 10, 2024

When your loved one experiences delusions or hallucinations for the first time, it can be frightening and overwhelming for everyone involved. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we've learned how to navigate these challenging moments. See Full Show Notes here Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Electronic medication dispensing and monitoring device for caregiver here

Dec 3, 2024

As caregivers for our loved ones with Alzheimer’s and other types of dementia, we often struggle with adapting activities to their changing abilities. Through our experiences, and what we’ve learned from others on their caregiving journeys, Nancy Treaster and I developed three important tips to help you create meaningful engagement that honors who our care receivers are today. Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Additional Resources Mentioned Other The Caregiver’s Journey podcast mentioned Home Safety here These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Large plastic rings child's toy that center screws into base here Adult coloring book here Dementia friendly puzzle here Lavender lotion here Bead maze here Fidget blanket here Photo gifts Shutterfly here Memory Cafe example here Takeaways From the moment of diagnosis, we need to shift our focus from what our care receivers used to do to what brings them joy now. Tip 1: Adjust Our Expectations Our care receivers’ engagement and abilities change throughout their journey — even throughout each day. Key points: Let go of ‘before’ comparisons Let go of outcomes Watch for signs of enjoyment or frustration Pay attention to new interests Adapt activities to current abilities Accept different ways of engaging Tip 2: Prioritize Their Safety As we introduce or adapt activities, safety must be a primary concern, considering both cognitive and physical abilities. Key points: Consider vision changes and depth perception challenges Adapt activities to safely maintain independence Provide appropriate supervision and get creative in places to find it Make creative adjustments to familiar activities Create support networks for safety Tip 3: Create Engaging Activities Create activities to reflect their personal history, career, hobbies and interests, while engaging their senses. Whenever possible, engage multiple senses for a deeper connection and engagement. Key points: Engage their senses: • Touch (e.g.: fidget blankets, textured items) • Sound (e.g.: familiar music, calming sounds) • Smell (e.g.: familiar scents, cooking aromas) • Sight (e.g.: colorful objects, family photos) • Movement (e.g.: seated dancing, simple exercises) Create social connections through: • Small group activities • Religious or spiritual practices • Memory cafes • Senior center programs • Family gatherings When planning activities: Observe body language for signs of engagement or distress Have backup calming activities ready if they get agitated Remember that watching can be a form of participation Consider “drip grief” (see bottom of post for definition) — both yours and theirs Be flexible and creative in your approach Accept help from others who want to support you Read Full Blog here

Nov 26, 2024

"If you give me a spa certificate but no gift of time to go with it, I'll probably never use it." As friends and family of Alzheimer’s and other dementia family caregivers, we want to give meaningful gifts that will actually be used and appreciated. Through our experiences and what we've learned from others on their caregiving journeys, we've developed five important categories of gifts that truly make a difference in a caregiver's life. See Full Show Notes here Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Begin your self-care journey guide here Scented soap Herbaria - here Sue’s favorite popcorn here Care support coordination Mealtrain.com here Caringbridge.com here Photo gifts Shutterfly here

Nov 19, 2024

"I wish I had started monitoring my husband's medication sooner than I did." As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that medication management becomes increasingly challenging. Through our experiences, and what we've learned from support groups and others on their journeys, we've developed four important tips to help you support your care receiver with medication management. See Full Show Notes here Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Electronic medication dispensing and monitoring device for caregiver here

Nov 11, 2024

“We’ve both had ‘that’ trip — the last trip that you take when you decide we’re not traveling ever again with our care receiver. Or, as we like to say, it’s the trip after the last trip you should have taken!” We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned travel decisions require careful consideration. Through our experiences, and what we’ve learned from support groups and others on their journeys, we’ve developed four important tips to help you decide whether you and your care receiver should stay home or go on what could be ‘that’ trip. See Full Show Notes here Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Fidget blanket here Takeaways Tip 1: Pre-test Travel Readiness Key points: Test longer car rides (at least an hour round trip) Try interstate driving if that will be part of your journey Experience crowds and noise if those will be present Test unfamiliar environments Pay attention to any existing signs of travel difficulty. Tip 2: Evaluate All Trip Components Key points: Assess sleeping arrangements and bathroom accessibility Consider the need for quiet space Evaluate support options at the destination Think about familiarity with locations Listen to your inner voice about the decision — is this the wisest choice? Tip 3: Plan Comprehensively Key points: Minimize advance information to avoid overwhelming your care receiver. Pack comfort items: Fidget blankets Familiar snacks Favorite music and headphones Photo books Familiar entertainment (DVDs, etc.) 3. Plan around normal routines: Meal times Sleep schedule Best times of day for different amounts of activity 4. Prepare for emergencies: Take IDs and insurance cards Bring extra medications Pack legal documents Consider anti-anxiety medication options Share detailed itinerary with family members Have your emergency contact information easy to find on your care receiver and in case something happens to you. Tip 4: Prepare Others Key points: Explain current abilities and challenges Provide conversation guidance Demonstrate proper approach techniques Give permission for others to opt out if they’re not comfortable Show grace toward those processing their own emotions Read More in This Blog here

Nov 4, 2024

The moment you realize your loved one with dementia is missing, every second feels critical. While the natural instinct is to immediately begin searching, having a clear action plan can make the difference in finding them quickly and safely. Through insights from John Clark, a specialized dementia search and rescue expert in Georgia, we've compiled three essential tips for these frightening situations. Additional Resources Mentioned Georgia Emergency Search and Rescue John Clark USA 404-309-7386 carmen@georgiaemergencysearchandrescue.org Professionally Trained in Urban Searches Alzheimers, Dementia, Children, Evidence Recovery, Major Disaster Search, NASAR, Disaster Assistance Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Takeaways Tip 1: Make the Right First Move Key points: Call emergency services immediately, before starting your own search Don't wait to make the call while searching on your own Ask if there are dementia-specialized search teams in your area Remember that it's okay to search after making the call Tip 2: Provide Critical Information to Searchers Key preparation points: Keep current photos readily available: Essential information to share: Recent conversations and topics they've discussed Their maiden name or previous names Nicknames family members use Common walking routes or regular destinations Nearby water sources (pools, ponds, lakes) Places from their past they might seek out Their current stage in their dementia journey Recent behaviors or patterns Current medications Tip 3: Know What to Expect After They're Found Standard procedures: Medical evaluation is typical Transportation to hospital via ambulance or police car Assessment for any injuries or exposure For More Read Full Blog here Building Better Local Resources Not every community has specialized dementia search and rescue teams, but there are ways to improve local capabilities: Steps to take: Contact your local Alzheimer's Association chapter Ask about existing specialized search resources Inquire about training opportunities for local emergency services Advocate for specialized training in your community Network with other caregivers to share experiences and resources Note: If you're in Georgia, specialized dementia search and rescue services are available. Contact your local emergency services or Alzheimer's Association chapter for more information.

Oct 29, 2024

The secret to successful holiday celebrations with our dementia care receivers isn't perfect decorations or parties—it's having a peaceful retreat space ready for them when needed. As caregivers navigating the holiday season with loved ones who have Alzheimer's and other types of dementia, we've learned that intentional planning makes all the difference. The holiday season brings additional activities, decorations, and visitors that can disrupt the routines so vital to our care receivers' well-being. Success requires careful observation, thoughtful preparation, and gradual adaptation of celebrations. Through our experiences, what we've learned from support groups, and from others on their journeys, we've developed five essential tips to help create positive holiday experiences while maintaining the calm and familiar environment your care receiver needs. Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Takeaways Tip 1: Preserve Daily Routines The holidays and routines might share the same number of letters, but that's where their similarities end. While the season pulls us toward special events and gathering, we must remember that routines are the cornerstone of stability for our care receivers. These familiar patterns aren't just habits—they're vital anchors that help our loved ones navigate their days with confidence and security. Tip 2: Be Prepared With a Calm Retreat Space In the midst of holiday celebrations, having a sanctuary becomes essential. Think of this space as your loved one's personal haven—a place where the overwhelming stimuli of holiday gatherings can't reach. Just as we all need a quiet moment sometimes, our care receivers often require a calm, familiar space where they can retreat and regroup when festivities become too much. Tip 3: Set Expectations With Visitors While Also Acknowledging Their Feelings The holiday season often brings an increase in visitors, each carrying their own expectations and memories of past celebrations. While these visits can be precious opportunities for connection, they require careful management to ensure everyone's comfort—especially our care receivers. Understanding and communicating about the current reality of your loved one's condition helps create more meaningful interactions and minimize uncomfortable situations. Tip 4: Teach Visitors How To Visit Creating successful visits is about helping others understand how to connect with your care receiver in their current reality. As their ability to process information changes, the ways others can best interact with them evolves too. Tip 5: Introduce Changes Gradually The magic of holiday decorations and traditions can quickly become overwhelming for someone with dementia. What once brought joy might now cause confusion or distress. This doesn't mean we must abandon all holiday cheer—rather, we need to be thoughtful about how we introduce these changes to our environment. Think of it as slowly turning up the dimmer switch rather than flipping on bright lights all at once.

Oct 22, 2024

As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned eating and drinking become significant challenges. Through our experiences, and what we've learned from support groups and others on their journeys, we've developed seven important tips to help you and your care receiver navigate dining. Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Additional Resources Mentioned Episode 13 - Incontinence Overnight here These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Bibs here Spork here Lowbowls here Grippy placemats here Other great caregiver dining aid products here Takeaways Tip 1: Observe Their Natural Eating Habits Observe and record how they naturally eat and drink (e.g., time of day, order, how they cut their food, which hand they use for each utensil). Continuously observe, adjust, and share with others who are helping your care receiver with their eating and drinking. Tip 2: Utilize Pre-made Meals and Visual Cues Leave pre-made meals in easily accessible places (e.g., eye-level in the refrigerator). Use visual cues like notes on the refrigerator or preset table settings with a note where the plate will go that tells your care receiver where the meal is. Check to make sure they have actually eaten their food and finished what they had to drink so you know if they’re able to understand what to do. Tip 3: Pre-cut Food, Adjust Portions, Observe How They’re Able to Eat and Drink Pre-cut food into manageable pieces. Consider converting sandwiches and other foods into finger foods. Be aware of changes in hand stability, grip strength, vision, and coordination. Some people with dementia diagnoses lose regulation with their appetite. It’s important for us to observe how they’re eating and the portions they’re eating to make sure they’re getting the proper amount of food. Introduce non-breakable drinkware, consider tops or adult sippy cups. Tip 4: Prepare for Messier Eating Consider using regular bibs or large disposable bibs Place a towel on the chair to catch spills. Keep a basket of cleaning supplies (e.g. paper towels, hand wipes, table wipes) handy for quick clean-ups. Tip 5: Simplify Eating Utensils and Tableware Low bowls with a slight rim make it easier to push food onto utensils Sporks combine the functions of spoons and forks, so one utensil can be used. Grippy placemats keep plates from sliding. Tip 6: Monitor and Adjust Nutrition Watch for unexplained weight loss or gain. Consult with doctors if you notice sudden changes. If you move your care receiver to a memory care community, develop nutrition plans and weight monitoring processes and stay actively engaged with them. Tip 7: Gradually Take Over Feeding and Hydration Position yourself closer to them at mealtimes to make assistance easier. What begins as prompting them to eat or drink and gradually increases to handing them their utensils and/or putting food on their utensils, showing them their drinking glass becomes modifying their drinking glass to make it easier for them to use, to eventually fully feeding them and controlling their beverages. Read More in This Blog here See full show notes here

Oct 15, 2024

As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that shaving, trimming nails, brushing teeth and trimming hair - what we’re calling personal care - can become challenging. These challenges often arise around the same time as bathing and dressing difficulties. How we provide support for our loved one will vary based on whether they stay at home during their journey or move into a care community. Not surprisingly, personal care is an area where many tips can be provided! Through our experiences, what we've learned from support groups, and others on their journeys, we've developed four initial areas of tips to help you and your care receiver with their personal care. Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Electric razor For men here For women here Oral swabs here Super soft toothbrush here Fresh Breath mouthwash here Electric hair trimmers here Full Show Notes https://thecaregiversjourney.com/personal-care-four-essential-tips-alzheimers-and-other-dementias/ Takeaways Understanding Personal Care Challenges in Dementia Care Tip 1: Mastering the Art of Shaving Transition to an electric razor as early as possible. Begin your support by prompting and supervising, gradually inserting yourself into the process. Try shaving when your care receiver is calm, possibly after meals or during naps. Aim to shave men's facial hair at least every other day to prevent discomfort from longer hair. For women, transition to electric razors for safety. Women also tend to become comfortable with letting their body hair grow. As early in their diagnosis as possible, get a thorough dental examination. If there is any dental work that's important to be completed, do it while they still understand and can participate. Consider transitioning to a dentist specializing in disabilities. If possible increase dental visits to every three months. Start by reminding your care receiver and supervising their tooth brushing. Gradually take over the process - for example, begin by handing them their toothbrush, transition to handing them their toothbrush with toothpaste on it, then transition to beginning to brush their teeth. Use a soft-bristled toothbrush and less toothpaste to prevent swallowing. Consider using disposable oral swabs with mouthwash for additional cleaning. Tip 4: Hair Care and Trimming Take photos of the hair style your loved one has. If they color their hair, talk about keeping it colored or letting it become their natural color. There are hair stylists who will come to your home instead of you having to go into a salon. Consider transitioning to easier-to-manage hairstyles. Learn basic haircutting techniques or ask their stylist to teach you. For women, longer hair in a soft bun might be easier than short styles. Personal care trimmers are very helpful for both men and women for eyebrows, hair in the ears and nose. Read More in This Blog here

Oct 8, 2024

As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned bathing and dressing can become significant challenges. These activities are often early signs of transitioning from the initial phase of the caregiving journey where we’re simply prompting and helping them, to what we call the "messy middle”, when we begin asserting more control. We are Nancy Treaster and Sue Ryan. Through our experiences, what we've learned from support groups, and others on their journeys, we've developed four important tips to help you navigate bathing and dressing for your care receiver. Takeaways Here are four tips to help you navigate this phase: Tip 1: Simplify Instructions As the journey progresses, your care receiver may begin struggling with multi-step instructions. Start giving one instruction at a time. Break down their tasks into smaller steps. Consider adaptive clothing options. Tip 2: Gradually Insert Yourself into the Process As their challenges increase, it’s time to become more involved in their bathing and dressing process. From early in their journey, if you haven’t already learned their natural bathing and dressing routines, observe and note them. Prompt or assist them in their routine order. Set up the bathroom to make it as easy for them as possible to bathe (if you normally keep everything put away, put the items out where they can see everything they’ll need), Put their clothing out. (Tip: When I began putting my husband’s clothing out, I began putting my clothing out as well, explaining to him I had heard this was a great tip to simplify dressing, and wanted to try it myself.) This helps maintain their dignity. Prepare everything needed for their bathing and dressing in advance. Consider marking the preferred shower temperature on the faucet. Tip 3: Transition to Sponge Baths At some point, traditional showers or baths may become too challenging or stressful. Use non-rinse bathing wipes for body cleansing. Try non-rinse shampoo caps for hair washing. For facial cleansing, consider products like Burt's Bees Micellar Water. Maintain a regular schedule of cleaning, even if it's not a full bath every day. Tip 4: Assist with the Dressing Process As with bathing, dressing will require more assistance over time. - Transition to adaptive clothing when appropriate, especially if incontinence becomes an issue. - Ensure safety during the dressing process (e.g., have them seated when putting on socks). - Be attentive to their comfort, including temperature preferences. - Encourage participation in the process as much as possible. Read More in This Blog here Additional Resources Mentioned Episode 11 - Cleaning Your Care Receiver here These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Adaptive clothing Shorts snap up here Pants snap up here Very nice adaptive clothing here Disposable incontinence underwear For women here For men here Adult washcloths/wipes here No-rinse bathing wipes here No-rinse shampoo caps here Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com

Oct 8, 2024

As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned overnight incontinence is one of the most challenging aspects of the journey. It's not a topic often discussed, yet it's a reality for us to face with compassion, dignity, and preparation. We are Nancy Treaster and Sue Ryan. Through our experiences, we've developed four important tips to help you navigate overnight incontinence in your caregiving journey. Takeaways Overnight incontinence can be particularly challenging because it affects the sleep of both the care receiver and the caregiver. It often requires a balance between managing a mess and getting necessary rest. This stage can be an inflection point in the caregiving journey, potentially requiring additional help or considering moving your loved one into a care community. Here are four tips to help you navigate this challenging phase: Tip 1: Transition to Nighttime and ultimately Disposable Incontinence Underwear It's important to ensure your care receiver has appropriate protection overnight. Tip 2: Protect the Mattress Accidents will happen, so it's important to protect the bed. Tip 3: Make the Bathroom Easy to Find Help your care receiver locate the bathroom easily if they wake up during the night. We cover this in detail in podcast episode 9 Preparing for Incontinence . Tip 4: Keep Your Care Receiver Comfortable Overnight As incontinence progresses, it becomes important to take additional steps to ensure comfort. Navigating overnight incontinence in Alzheimer's and dementia care is challenging in the beginning as you’re both adapting. With patience, curiosity, compassion, preparation and the right mindset, it can be manageable. Key points: Transition to appropriate nighttime protection. Protect the mattress and be prepared for frequent sheet changes. Make the bathroom easy to find. Keep your care receiver as comfortable as possible overnight. Consider a mid-night change if possible. Maintain hydration but manage fluid intake timing. Blog here Additional Resources Mentioned Episode 4 - Wandering here Episode 10 - Incontinence Begins here Child proof door knob cover or double deadbolt locks for external doors Child proof door knob covers here Extra tall pet gate from (40” to 70”) - 57” help Disposable incontinence underwear For women here For men here Pads Mattress pads 34”x36” here 72”X36” here Disposable incontinence pads here Brown large pet pee pads here Mattress bag here Peelaways here Cameras or baby monitor for the bedroom and bathroom Baby monitors - some come with motion alarms here Motion alarm here Cameras - If your care receiver is still staying home alone, consider one with an intercom Ring indoor with two-way talk here Washable incontinence underwear For women Colors here Cream here For men Briefs here Boxer briefs here Disposable incontinence underwear For women here For men here Disposable incontinence underwear guards For men here For women here Adult washcloths/wipes here Disposable incontinence pads here Round tipped scissors here Rate, Subscribe and Share Your Tips on Social Media! Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform. Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com

Oct 1, 2024

As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that full incontinence is an inevitable part of our journey. It’s a topic not often discussed, yet it’s a reality for us to navigate with compassion, dignity, and preparation — for both us and our care receiver. We are Nancy Treaster and Sue Ryan. Through our experiences, we’ve developed 2 valuable tips to help you navigate bowel and bedbound incontinence in your caregiving journey. Watch Bowel and Bedbound Incontinence: Two Essential Topics / Alzheimer’s and Other Dementias https://youtu.be/PD4zOctyfPw Takeaways Read More in This Blog here Additional Resources Mentioned Episode 10 - Incontinence Begins here Episode 11 - Cleaning Your Care Receiver here Changing a bedbound care receiver YouTube video here Changing a Depend with a bowel movement here Disposable incontinence underwear For women here For men here Wheels for bed Bed with rails Wedge pillow Adaptive clothing Shorts snap up here Pants snap up here Very nice adaptive clothing here Non-rinse bathing wipes here Adult washcloths/wipes here Disposable incontinence pads here Round tipped scissors here Scented small trash can liner here Adult incontinence can here Rate, Subscribe and Share Your Tips on Social Media! Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform. Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com

Sep 24, 2024

As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned managing incontinence is one of the most challenging aspects of our journey. It’s a topic where having detailed information is vital to our adjusting to this part of our journey mentally, physically, and emotionally. We are Nancy Treaster and Sue Ryan. Through our experiences, and insights we’ve learned from others in support groups, we’ve developed three indispensable tips to help you navigate the important component of incontinence care with your care receiver — cleaning them Takeaways here Additional Resources Mentioned Episode 10 - Incontinence Begins here Episode 12 - Bedbound and Bowel Incontinence here Episode 13 - Incontinence Overnight here Adaptive clothing Shorts snap up here Pants snap up here Very nice adaptive clothing here Disposable incontinence underwear For women here For men here Adult washcloths/wipes here Non-rinse bathing wipes here Disposable incontinence pads here Round tipped scissors here Rate, Subscribe and Share Your Tips on Social Media! Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform. Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com

Sep 17, 2024

Who knew that understanding the stages of incontinence could make such a difference in our caregiving journey? As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned incontinence is an inevitable - and can be - a challenging part of our journey. It’s a reality and a topic that’s not often discussed. It’s helpful for us to be prepared to navigate incontinence with compassion, dignity, and grace for our care receivers and for us. We are Nancy Treaster and Sue Ryan. Through our experiences, we’ve developed four tips to help you navigate the pre-incontinence and early incontinence phases on your caregiving journey. Takeaways Before we introduce your tips, it’s helpful to understand what we mean by ‘pre-incontinence’ and ‘early incontinence’. Pre-Incontinence This is the phase before actual incontinence begins, when our care receiver is showing signs incontinence may be on the horizon. Signs include: Using the trash can instead of the toilet for toilet paper Not flushing the toilet Resisting drinking to avoid bathroom trips Looking around anxiously (potentially for a bathroom) Early Incontinence When actual incontinence begins, it usually starts with urinary incontinence. Your loved one may still be trying to find the bathroom but often doesn’t make it in time. Signs include: Not getting to the bathroom fast enough Holding their stomach, bottom, or between their legs Tip 1. Make it Easy to Find the Bathroom Yes, to us this sounds simple. To our loved one, they are disconnecting with the signs their bodies are telling them they need to go, and the steps to use the bathroom. One of the most effective ways to support your loved one during pre-incontinence and early incontinence is by making the bathroom as accessible and easy to find as possible. Tip 2. Schedule Bathroom Breaks Establishing a consistent bathroom routine can significantly reduce accidents and make the transition into full incontinence more manageable. Tip 3. Simplify Cleanup As incontinence progresses, accidents will happen. Being prepared can make cleanup easier and less stressful for both you and your loved one. Tip 4. Think Positively and Have Lots of Grace Perhaps the most important tip of all is to maintain a positive attitude and extend grace to both you and your loved one. Read More in This Blog here Additional Resources Mentioned Episode 11 - Cleaning Your Care Receiver here These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Child proof door knob cover or double deadbolt locks for external doors Child proof door knob covers here Extra tall pet gate from (40” to 70”) - 57” here Disposable incontinence underwear For women here For men here Pads Mattress pads 34”x36” here 72”X36” here Disposable incontinence pads here Brown large pet pee pads here Easy mops Swiffer mop here Bona here Hard surface cleaners Pine Sol here Pooph here Odoban here Fabuloso here Carpet cleaning Resolve Urine Destroyer here Resolve Ultra Pet here Bissell Pet Carpet Cleaner here Resolve Urine Destroyer Carpet Cleaning Machine Formula here Rate, Subscribe and Share Your Tips on Social Media! Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform. Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com

Sep 10, 2024

Description Who knew being prepared could make such a difference in managing incontinence? Incontinence can be one of the most difficult areas of our caregiving journeys. It’s personal. It’s awkward. It’s rarely something discussed — by anyone — making it potentially uncomfortable to talk about. It’s also one of the most important areas to navigate with compassion and dignity — for us and for our care receiver. Early preparation is essential. This is your moment of truth as a caregiver. Ask yourself: Can I handle this physically? Mentally? Emotionally? And if so, how? The good news is, you’ve got time to think it through, talk with others, and make smart decisions. Use this runway wisely — your future self will thank you. We are Nancy Treaster and Sue Ryan — we’ve faced incontinence care head-on. Trust us, it’s better to think about this now or you’ll wish you had. There’s a lot going on with incontinence! In this episode, we’re sharing four game-changing tips to help you be prepared. Takeaways For takeaways click here Additional Resources Mentioned Episode 11 - Cleaning Your Care Receiver here These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Washable incontinence underwear For women Colors here Cream here For men Briefs here Boxer briefs here Disposable incontinence underwear For women here For men here Rate, subscribe and share your tips on social media! Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform, click on Podchaser and click at the bottom “Write my review” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Keywords Preparing for incontinence, Boundaries, Alzheimer's, dementia, caregiver, caregiving, dementia care, memory care, dementia caregiver blog, Alzheimer's blog, caregiver blog, senior caregiver blog, dementia caregiver tips, how to care for someone with dementia living alone, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, frontotemporal dementia, dementia caregiver tips, family caregiver, Sue Ryan, Nancy Treaster, Susan J Ryan

Sep 3, 2024

Description When a close family member is diagnosed with dementia, it can be uniquely challenging for young adults to navigate this new reality. We are Nancy and Merritt Treaster. When Merritt was in his early twenties, his dad, who was 60 at the time, was diagnosed with Frontotemporal dementia. A few short years later, his grandfather, at the age of 85, was diagnosed with Alzheimer’s disease. Merritt’s experiences led us to create this episode to help other young adults. He has distilled his thoughts on how to be better prepared into four essential tips for young adults facing a family member’s dementia diagnosis. Takeaways For takeaways click here Rate, subscribe and share your tips on social media! Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform, click on Podchaser and click at the bottom “Write my review” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Keywords Young adult, teenager, boundaries, incontinence, Alzheimer's, dementia, caregiver, caregiving, dementia care, memory care, dementia caregiver blog, Alzheimer's blog, caregiver blog, senior caregiver blog, dementia caregiver tips, how to care for someone with dementia living alone, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, frontotemporal dementia, dementia caregiver tips, family caregiver, Sue Ryan, Nancy Treaster, Susan J Ryan, Merritt Treaster

Aug 27, 2024

You’re going to wish you’d known about padding hard corners earlier in your caregiving journey! We are Nancy Treaster and Sue Ryan. Through our experiences as caregivers for our family members and loved ones with Alzheimer’s and other types of dementia, we’ve learned ensuring home safety is both vitally important and ever-changing. In this post, we’re sharing three main tips for managing safety — both inside and outside the home. These help you keep your loved one safe while giving you peace of mind. Takeaways Practical Tips Tip 1: Create a File of Life One of the most effective ways to keep your loved one safe is by creating a document called File of Life . File of Life was created to give first responders valuable medical and personal information when the people they’re helping can’t. The valuable information this File of Life document contains about your care receiver includes: Tip 2: Care Receiver proof Your Home As your loved one becomes more curious and restless, it’s time to care receiver proof your home. This process is ongoing — observe and adjust as needed. It’s most likely still hard for us to know what they can and can’t remember. We’re so used to them being able to think rationally, it can be a hard transition to using the position they can’t. For those of you who have raised children, it’s the same kind of process — they’re curious, you don’t know what they’ll explore, and they don’t yet know what is safe or dangerous. Tip 3: Minimize Fall Risks Falling is unfortunately inevitable. Here are steps you can take to minimize risks and impact. Pad corners and edges of furniture Remove area rugs to prevent tripping Check floors for any loose or risen corners Use fall tracking devices (wristbands, shoe inserts, phone apps) Improve lighting to reduce shadows Make shower entry safer (if you have a combination tub/shower — replace it with a shower only and install one without a lip on the floor they could trip on) Grip socks and non-slip shoes Be prepared for falls with tools like a floor lift chair Install cameras so you can watch their movements For takeaways click here Additional Resources Mentioned File of Life: Create a document called File of Life . Child proof door knob cover or double deadbolt locks for external doors Child proof door knob covers here Double keyed deadbolt here Window sash here Child proof cabinet locks here Child proof stove knob covers here Child proof refrigerator latch here Child proof switch plate for garbage disposal here Extra tall pet gate from (40” to 70”) - 57” here Child padding foam here Cameras or baby monitor for the bedroom and bathroom Baby monitors - some come with motion alarms here Motion alarm here Cameras - If your care receiver is still staying home alone, consider one with an intercom Ring indoor with two-way talk here Grip Socks here Floor lift chairs Indeelift here Generic floor lift chair here Rate, subscribe and share your tips on social media! Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform, click on Podchaser and click at the bottom “Write my review” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Keywords Home safety, child proof, dementia proof, reduce falls, Alzheimers, dementia, caregiver, caregiving, Alzheimers care, dementia care, memory care, best dementia podcast, alzheirmers podcast, caregiver podcast, dementia caregiver podcast, dementia podcast, alzheimers podcast, caregiver podcast, senior caregiver podcast, dementia caregiver tips, frontotemporal dementia, dementia caregiver tips, how to deal with dementia as a caregiver, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, Sue Ryan, Nancy Treaster, Susan J Ryan

Aug 20, 2024

If your loved one can’t do three of the things we discuss in this episode, they should not be home alone. As caregivers for our husbands, parents, and other loved ones with Alzheimer’s and other types of dementia, we both know that one of the early goals for our loved one is to help them maintain their independence as long as it's reasonable. You’ll be balancing your concern for their safety with their independence, remembering their ability to stay home alone is temporary. We are Sue Ryan and Nancy Treaster, and through our experiences, we're sharing six key tips for supporting your loved one's ability to be home alone. Show Notes https://sueryansolutions.medium.com/leaving-your-loved-one-at-home-alone-six-essential-tips-b46fc1b6a1ef Related episodes Episode #7 Care Receiver Home Safety / Alzheimer’s and Other Dementias https://youtu.be/dFlZXGn4r9k Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Audit for home list Laundry: Ability to wash, dry, and put away clothes Home cleaning: Bathroom cleanliness, safe use of cleaning products Personal hygiene - Bathing safety, overall cleanliness Safety with appliances and equipment: Proper use of kitchen appliances Locking and unlocking doors: Security awareness Home safety: Identifying and removing fall risks (rugs, furniture placement) Temperature control: Appropriate use of thermostat, pre-program and cover over it, control through app. Thermostat control Control through app I use my Nest for this as well and have it on the same app as the cameras here Amazon product works with Ring here Thermostat cover here Electronic medication dispensing and monitoring device for caregiver here Inside and outdoor cameras Cameras with an intercom Ring indoor with two-way talk here Ring outdoor with two-way talk here Tracking devices for their person Apple Airtag here Samsung SmartTag - here Shoes AirTag here Shoes generic here Watch here Rate, subscribe and share your tips on social media! Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform, click on Podchaser and click at the bottom “Write my review” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com

Jul 30, 2024

If you can successfully leverage tip one in this episode you will have an easy path to taking away the car keys. As caregivers for our husbands, parents, and other loved ones with Alzheimer’s and other types of dementia, we both learned that taking away the car keys can be a sensitive and important issue to address. In the beginning stages of dementia, our primary goal is to balance safety with our care receivers' desire for independence. We are Sue Ryan and Nancy Treaster, and through our experiences, we're offering four key tips. Show Notes Takeaways We offer four tips to help you. Tip 1: Understand Legal and Insurance Considerations One of the most effective ways to approach the driving issue is to familiarize yourself with the legal and insurance implications in your area. This involves researching local laws and understanding the potential consequences of allowing someone with dementia to continue driving. Tip 2: Implement Tracking Measures For those in the early stages of dementia who are still able to drive safely, tracking can provide peace of mind for caregivers while allowing the care receiver to maintain some independence. Tip 3: Gradual Transition: Riding Along and Taking Over As dementia progresses, it's helpful to start riding along frequently and gradually take over driving responsibilities. Tip 4: Removing Driving Completely Sometimes, for safety reasons, we need to take more decisive action to prevent our loved ones from driving. Additional Resources Mentioned State laws on dementia We found this state by state summary online but can’t vouch for the source. https://www.dementiacarecentral.com/caregiverinfo/driving-problems/#state-laws Check you state or country law specifically by searching like this i the US “ state name law driving with dementia” These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Tracker for their car Apple Airtag here Samsung SmartTag - here Tracking device for their car with speed detection etc … here Tracking device for their person Apple Airtag here Samsung SmartTag - here Shoes AirTag here Shoes generic here Watch here Rate, subscribe and share your tips on social media! Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform. Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Keywords Alzheimers, dementia, caregiver, caregiving, Alzheimers care, dementia care, memory care, best dementia podcast, best alzheirmers podcast, best caregiver podcast, best caregiving podcast, best caregiver podcast, dementia caregiver podcast, dementia podcast, alzheimers podcast, caregiver podcast, senior caregiver podcast, dementia caregiver tips, frontotemporal dementia, dementia caregiver tips, how to deal with dementia as a caregiver, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, Sue Ryan, Nancy Treaster, Susan J Ryan Push

Jul 30, 2024

I wish I had known about this child proofing tip before I spent so much money on locksmiths. In this episode we talk about wandering. As caregivers for our husbands, parents, and other loved ones with Alzheimer’s and other types of dementia, we've learned that wandering is a complex and often frightening behavior that requires careful management. Wandering can occur both inside and outside the home, during day or night, and each scenario presents unique challenges. We are Sue Ryan and Nancy Treaster, and through our experiences, we have four tips to address wandering while maintaining our loved ones' dignity as well as ensuring their safety. Show Notes Takeaways Outside Wandering Tip 1: Use your grapevine Tip 2: Consider wearable tracking devices Tip 3: Register them with EMT’s and police Tip 4: Consider child proof door knob covers on doors that lead to the outside Tip 5: Consider window sash locks and a pole for any sliding doors Inside Wandering Tip 1: Safety proof the areas you allow them to go during the day Tip 2: Discuss sleeping medication with their doctor Tip 3: Allow them access at night to only the bedroom and a bathroom Tip 4: Consider cameras or baby monitors to make sure you can watch them especially at night Tip 5: Safety proof access to stairs Additional Resources Mentioned 7. Home Safety: Three Essential Tips / Alzheimer’s and Other Dementias https://youtu.be/dFlZXGn4r9k These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Tracking devices for their person Apple Airtag here Samsung SmartTag - here Shoes AirTag here Shoes generic here Watch here Child proof door knob cover or double deadbolt locks for external doors Child proof door knob covers here Double keyed deadbolt here Window sash here Extra tall pet gate from (40” to 70”) - 57” here Cameras or baby monitor for the bedroom and bathroom Baby monitors - some come with motion alarms here Motion alarm here Cameras - If your care receiver is still staying home alone, consider one with an intercom Ring indoor with two-way talk here Ring outdoor with two-way talk here Please click here to review, follow or subscribe to our podcast. Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/

Jul 30, 2024

You are going to wish you knew about the third tip in this episode much earlier! As caregivers for our husbands, parents, and other loved ones with Alzheimer’s disease and other types of dementia, we've learned that communication is a constantly evolving process. In the beginning (the early season of the diagnosis), our primary goal is to help our care receivers maintain as much dignity and independence as possible. We are Sue Ryan and Nancy Treaster, and through our experiences, we've developed four tips to help you communicate. Show Notes Takeaways In this episode, we're talking about communication “in the beginning”. When we say “In the beginning” we mean when you're mostly helping your care receiver manage things (often behind the scenes), while also helping them maintain their independence. We offer four tips to help you. Tip 1: Help Them Plan Their Day One of the most effective ways to support your loved one is by assisting them in planning their day. This involves understanding what they can realistically accomplish and creating a manageable list of tasks for them to do. The list also helps you support them, making it easier to prompt them gently throughout the day to complete these tasks. This approach helps them feel valued and accomplished at day's end. Tip 2: Simplify and Minimize As cognitive abilities decline, it's important to simplify instructions and minimize distractions. What worked one week might be too complex the next, so constant observation and adjustments are necessary. Tip 3: Use Positive Reinforcement and Body Language Positive reinforcement can have a profound impact on your loved one's mood and cooperation. Even if it feels unnatural at first, offering praise for completing simple tasks can boost their confidence and create a more positive atmosphere. Tip 4: Share the Truth They Need to Hear While honesty is important, we've learned that it's often more beneficial to share "the truth they need to hear" rather than the whole truth. Rather than think of this as lying, think of it as providing information in a way that minimizes their – and often our - anxiety and frustration. Everything you're experiencing in terms of communication during this early season of their dementia may feel challenging and strange. You'll be constantly adapting and adjusting your approach. But, this is just a phase. You will manage through this situation, and it will get better. Related episodes 2. Memory Loss: Four Essential Tips / Alzheimer’s and Other Dementias / Practical Tips and Candid Conversations Rate, subscribe and share your tips on social media! Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform. Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform, click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Keywords Alzheimers, dementia, caregiver, caregiving, Alzheimers care, dementia care, memory care, best dementia podcast, best alzheirmers podcast, best caregiver podcast, best caregiving podcast, best caregiver podcast, dementia caregiver podcast, dementia podcast, alzheimers podcast, caregiver podcast, senior caregiver podcast, dementia caregiver tips, frontotemporal dementia, dementia caregiver tips, how to deal with dementia as a caregiver, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, Sue Ryan, Nancy Treaster, Susan J Ryan

Jul 30, 2024

Does it feel like a punch in the gut every time you realize something new your loved one has forgotten? As caregivers for our husbands, parents, and other loved ones with Alzheimer’s disease and other types of dementia, we've learned that memory loss in the early stages is a challenging journey. In the beginning (the early season of the diagnosis), our primary goal is to help our care receivers maintain as much dignity and independence as possible while providing support behind the scenes. We are Sue Ryan and Nancy Treaster, and through our experiences, we have four main tips that we'd like to share with you. Show Notes Takeaways In this episode, we're talking about memory loss “in the beginning”. When we say “In the beginning” we mean when you're mostly helping your care receiver manage things (often behind the scenes), while also helping them maintain their independence. We offer four tips to help you. Tip 1: Figure Out What Information They're Struggling to Remember One of the most effective ways to support your loved one is by identifying what information they're having trouble remembering. This involves careful observation and adapting your approach to help them maintain their dignity and independence. Tip 2: Understand and Help with What They Can No Longer Do As the condition progresses, it’s important to adapt tasks your loved one can no longer manage independently. Tip 3: Get Other People Involved, As Appropriate Sharing the diagnosis with others can be a sensitive topic, but it's often crucial for both the caregiver and the care receiver. Tip 4: Watch Out for UTIs - They Can Muddle the Whole Situation Urinary Tract Infections (UTIs) can significantly impact cognitive function and behavior in people with dementia and there can often be no symptoms except a sudden cognitive decline. At the beginning it’s hard to get your head around what is happening. You will get through this phase, and your confidence will grow as you learn to handle each new situation. Related episodes 3. Communication - in the Beginning: Four Essential Tips / Alzheimer’s and Other Dementias / Practical Tips and Candid Conversations Rate, subscribe and share your tips on social media! Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform. Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Keywords Alzheimers, dementia, caregiver, caregiving, Alzheimers care, dementia care, memory care, best dementia podcast, best alzheirmers podcast, best caregiver podcast, best caregiving podcast, best caregiver podcast, dementia caregiver podcast, dementia podcast, alzheimers podcast, caregiver podcast, senior caregiver podcast, dementia caregiver tips, frontotemporal dementia, dementia caregiver tips, how to deal with dementia as a caregiver, information on dementia for caregivers, how to be a caregiver for someone with dementia, Sue Ryan, Nancy Treaster, Susan J Ryan

Jul 30, 2024

We are Sue Ryan, Nancy Treaster, and Merritt Treaster. In this episode we're introducing ourselves to you and sharing why we are so passionate about bringing you practical tips and candid conversations for Alzheimer’s and other dementia family caregivers. Show Notes Takeaways Nancy and I have known each other for many years and have often discussed our caregiving journeys together. We're both passionate about helping you navigate your caregiving journeys with fewer surprises and more confidence. Our podcast offers practical tips and we have candid conversations to help you tackle day -to -day common dementia challenges. Our purpose is to give you the knowledge and the resources you need to navigate your journey with strength, patience, and peace of mind. We're all on this journey together. Rate, subscribe and share your tips on social media! Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform. Please click here to review, follow or subscribe to our podcast. If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or Google On the right you’ll see a box with “Follow”, “Rate and Review” and “Share” Connect with us and share your tips: Website: https:// www.thecaregiversjourney.com Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Email: sue@thecaregiversjourney.com , nancy@thecaregiversjourney.com Keywords Alzheimers, dementia, caregiver, caregiving, Alzheimers care, dementia care, memory care, best dementia podcast, best alzheirmers podcast, best caregiver podcast, best caregiving podcast, best caregiver podcast, dementia caregiver podcast, dementia podcast, alzheimers podcast, caregiver podcast, senior caregiver podcast, dementia caregiver tips, frontotemporal dementia, dementia caregiver tips, how to deal with dementia as a caregiver, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, Sue Ryan, Nancy Treaster, Merritt Treaster, Susan J Ryan

Jul 10, 2024

The Caregiver’s Journey is an innovative and refreshing way to learn how to tackle day-to-day Alzheimer's and other dementia family caregiving challenges. Using practical tips and candid conversations, Sue and Nancy help you navigate caregiving’s ups and downs, so you move from feeling frustrated and overwhelmed to confident and supported.