192: Empowering Yourself in the Face of Muscular Dystrophy: Discovering Strength and Hope When a Cure Seems Out of Reach

Join us today for a very special episode featuring Devan Kline, our co-founder and visionary, joined by Preston Bass, a young boy living with muscular dystrophy, and his mother advocate for the MDA . Muscular dystrophy is a genetic disorder that affects the muscles in the body. It is a progressive condition that worsens over time and can result in severe disability or even death. If you or a loved one has recently been diagnosed with muscular dystrophy, it can be overwhelming and scary. However, with the right knowledge and support, it is possible to navigate the diagnosis and live a fulfilling life with the disease. Understanding Muscular Dystrophy Muscular dystrophy is a group of disorders that affect the muscles, causing weakness and muscle wasting. It is caused by genetic mutations that affect the proteins responsible for muscle function. The most common form of muscular dystrophy is Duchenne muscular dystrophy, which primarily affects boys and typically presents in early childhood. Other forms of muscular dystrophy include Becker muscular dystrophy, limb-girdle muscular dystrophy, and facioscapulohumeral muscular dystrophy. Navigating the Diagnosis If you or a loved one has been diagnosed with muscular dystrophy, it is important to understand the implications of the condition and what to expect. Your doctor will likely provide information about the specific type of muscular dystrophy you have and how it may affect your body over time. It is also important to seek out a support system to help you navigate the emotional and practical aspects of living with muscular dystrophy. This may include family members, friends, support groups, and healthcare providers. Talking to others who have experience with the condition can be especially helpful in understanding what to expect and how to cope. Living with Muscular Dystrophy Living with muscular dystrophy can present a range of challenges, both physical and emotional. However, there are many strategies and resources available to help you manage the disease and maintain your quality of life. Muscular dystrophy can be a challenging condition to live with, but with the right knowledge and support, it is possible to maintain a fulfilling life. By understanding the implications of the condition, seeking out a supportive community, and utilizing the resources available, you can navigate the diagnosis and live your best life with muscular dystrophy. _____________________ We are thrilled to announce that Burn Boot Camp and @MDAorg are coming together for the seventh annual, “Be Their Muscle” event! This year, Burn Boot Camp is looking to raise $1 MILLION to benefit Muscular Dystrophy Association (MDA) families!! Families are at the heart of the MDA’s mission. The MDA strives to create more hope and answers for families living with muscular dystrophy and related diseases that take away physical strength and mobility. Join us across the nation as we work out while raising funds and awareness for the MDA. The event will take place at participating Burn Boot Camp locations on April 22nd and we can’t wait to see YOU out on the Floating Floor! To learn more about getting involved, please visit THIS LINK today! #BeTheirMuscle 1️⃣ Head to this link 2️⃣ DONATE to help us raise funds for ⁠@mdaorg One mission, one BURN NATION!