42. Pursuing a Diagnosis with Linda Bluestein, MD

Hypermobility disorders can be difficult to diagnose, with no one clear path forward. Without an obvious road to walk, people with chronic pain who suspect hypermobility disorders may feel defeated and overwhelmed, struggling to find the help they need. In this episode, Bendy Bodies founder Linda Bluestein, MD opens up about her own journey getting an EDS diagnosis and starting her work as a hypermobility specialist. Dr. Bluestein breaks down the different types of connective tissue disorders and how they might be diagnosed. She discusses reasons medical professionals might encourage someone to seek a diagnosis, and theorizes on why they might discourage it. She gives advice on where to start this journey, and discusses the importance of having even just one medical professional in your corner. As well, she suggests types of specialists who might have knowledge of connective tissue disorders, and outlines steps people can take to prepare for a doctor’s visit. Dr. Bluestein offers compassionate advice to people who hear “no” a lot, and cautions against confirmation bias. She busts some harmful myths around connective tissue diagnoses and reveals some of the pitfalls a person might encounter in their pursuit of a diagnosis. Full of advice from a medical expert in hypermobility, this is an episode for anyone feeling defeated or looking to confirm a diagnosis. #ButYouDontLookSick #ChronicPain #bendybodies #BendyBodiesPodcast #ehlersdanlossyndrome #ConnectiveTissue #ZebraStrong #collagen #diagnosis #physiciansofinstagram #EhlersDanlos #hypermobility #hypermobilitymd #bodiesinmotion --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message Learn more about your ad choices. Visit megaphone.fm/adchoices